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[银屑病患者的患病经历及就诊行为]

[Illness experience and treatment seeking behavior of psoriasis patients].

作者信息

Schmid-Ott G, Jäger B, Künsebeck H W, Ott R, Malewski P, Lamprecht F

机构信息

Abteilung Psychosomatik und Psychotherapie, Medizinischen Hochschule Hannover.

出版信息

Hautarzt. 1997 Aug;48(8):547-55. doi: 10.1007/s001050050626.

Abstract

We analyzed how psoriasis patients sought professional help and correlated it to their illness attitudes and feeling of stigmatization. Semi-structured interviews of 400 patients were reanalyzed to identify homogeneous groups concerning initial reactions at first manifestations of the disease. Four groups ("isolated", "stigmatized", "socially supported" and "non-stigmatized" patients) were found and cross-tabulated with five resulting groups of a second cluster-analysis concerning the "style" of the seeking behaviour of professional and paraprofessional help and medical measures against the psoriasis ("multi-users", "arranged mini-users", "waiting-room patients", "optimists" and "self-therapists"). We were able to describe typical courses of illness behaviour depending on the initial reaction. The results are discussed with regard to the desirable identification of problematic patients within professional care units.

摘要

我们分析了银屑病患者寻求专业帮助的方式,并将其与他们的疾病态度和耻辱感相关联。对400名患者进行的半结构化访谈被重新分析,以确定在疾病首次表现时关于初始反应的同质群体。发现了四组(“孤立型”、“受耻辱型”、“社会支持型”和“无耻辱感型”患者),并与关于寻求专业和辅助专业帮助的行为方式以及针对银屑病的医疗措施的第二次聚类分析得出的五组(“多使用者”、“安排好的小使用者”、“候诊室患者”、“乐观主义者”和“自我治疗者”)进行交叉制表。我们能够根据初始反应描述疾病行为的典型过程。就专业护理单位内对有问题患者的理想识别进行了结果讨论。

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