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银屑病患者感知污名化的预测因素。

Predictors of perceived stigmatization in patients with psoriasis.

机构信息

Institute of Psychology, Health, Medical and Neuropsychology Unit, Leiden University, Leiden, the Netherlands.

Department of Medical Psychology, Radboud University Medical Center, Nijmegen, the Netherlands.

出版信息

Br J Dermatol. 2017 Mar;176(3):687-694. doi: 10.1111/bjd.14875. Epub 2016 Dec 22.

Abstract

BACKGROUND

The physical appearance of psoriasis can be cosmetically disfiguring, resulting in a substantial social burden for patients. An important aspect of this burden is the experience of stigmatization. While stigmatization is known to be disabling and stressful for patients, little is known about its correlates, and effective interventions are lacking.

OBJECTIVES

To examine predictor variables for perceived stigmatization in psoriasis.

METHODS

Questionnaires were administered to 514 patients with psoriasis in a cross-sectional study. Zero-order correlation and multiple-regression analyses were conducted including sociodemographic, disease-related, personality, illness cognitions and social support predictor variables.

RESULTS

Stigmatization was experienced by 73% of patients to some degree, and correlated with all five categories of predictor variables. In multiple-regression analyses, stigmatization was associated with higher impact on daily life; lower education; higher disease visibility, severity and duration; higher levels of social inhibition; having a type D personality; and not having a partner.

CONCLUSIONS

The results indicate that perceived stigmatization is common in psoriasis, and can be predicted by sociodemographic, disease-related and personality variables. These predictor variables provide indications of which patients are especially vulnerable regarding perceived stigmatization, which might be used in treatment.

摘要

背景

银屑病的外在表现可能会影响容貌,给患者带来沉重的社会负担。这种负担的一个重要方面是患者所经历的污名化。虽然众所周知,污名化对患者具有致残性和压力性,但我们对其相关因素知之甚少,也缺乏有效的干预措施。

目的

探讨银屑病患者感知污名化的预测因素。

方法

采用横断面研究,对 514 例银屑病患者进行问卷调查。对包括社会人口学、疾病相关、人格、疾病认知和社会支持在内的预测变量进行零阶相关和多元回归分析。

结果

73%的患者在某种程度上经历了污名化,且与所有五类预测变量均相关。在多元回归分析中,污名化与日常生活受影响程度更高、教育程度更低、疾病可见度、严重程度和持续时间更高、社会抑制程度更高、具有 D 型人格特征以及没有伴侣有关。

结论

结果表明,银屑病患者普遍存在感知污名化,且可由社会人口学、疾病相关和人格变量来预测。这些预测变量提示了哪些患者尤其容易受到感知污名化的影响,这可能有助于治疗。

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