Söderberg S, Lundman B, Norberg A
Department of Advanced Nursing, Umeå University, Sweden.
Res Nurs Health. 1997 Dec;20(6):495-503. doi: 10.1002/(sici)1098-240x(199712)20:6<495::aid-nur4>3.0.co;2-h.
Fibromyalgia (FM) is a chronic pain syndrome that has a considerable impact on the ill person's daily life. The purpose of this study was to describe levels of sense of coherence (SOC), perceptions of well-being, and stress in daily life in women with FM in comparison with healthy women, and to determine whether SOC is related to perceived levels of stress and well-being. Thirty women with FM were compared with 30 healthy women matched for Type A behavior. The results revealed a complex picture of the women with FM. On the one hand, they reported many symptoms but, on the other, they rated themselves as feeling quite well and experiencing an SOC in life, despite severe problems. The FM women with a stronger SOC perceived greater well-being than those with a weaker SOC. They felt more hopeful, more free, more valuable, and more like others. Results suggest that women with a weaker SOC may need extra support. More research is needed to investigate the experience of living with FM in order to discover what it is that makes life worthwhile despite high symptom levels.
纤维肌痛（FM）是一种慢性疼痛综合征，对患者的日常生活有相当大的影响。本研究的目的是描述纤维肌痛女性与健康女性相比的连贯感（SOC）水平、幸福感认知和日常生活中的压力，并确定连贯感是否与感知到的压力水平和幸福感相关。将30名纤维肌痛女性与30名在A型行为方面匹配的健康女性进行比较。结果揭示了纤维肌痛女性的复杂情况。一方面，她们报告了许多症状，但另一方面，尽管存在严重问题，她们对自己的感觉相当良好，并且在生活中体验到连贯感。连贯感较强的纤维肌痛女性比连贯感较弱的女性感知到更大的幸福感。她们感觉更有希望、更自由、更有价值，也更像其他人。结果表明，连贯感较弱的女性可能需要额外的支持。需要更多的研究来调查纤维肌痛患者的生活经历，以便发现尽管症状水平很高，但是什么让生活有价值。
