Kasarkis E J, Elza T A, Bishop N G, Spears A C
Department of Neurology, University of Kentucky and Veterans Affairs Medical Centers, Lexington 40511, USA. kasarkis.edward_j+@lexington.va.gov
J Neurol Sci. 1997 Oct;152 Suppl 1:S90-2. doi: 10.1016/s0022-510x(97)00252-9.
Support groups are beneficial to ALS patients and their families by providing a forum for discussion and emotional support. The low prevalence of ALS and the patients limited mobility make it difficult to sustain support groups in rural environments. We describe the organization of an ALS support network in the Commonwealth of Kentucky using real-time, interactive video.
支持小组通过提供一个讨论和情感支持的平台，对肌萎缩侧索硬化症（ALS）患者及其家属有益。ALS的低发病率以及患者有限的行动能力使得在农村地区维持支持小组变得困难。我们描述了在肯塔基州联邦利用实时交互式视频建立一个ALS支持网络的组织情况。
