Burrus B B, Liburd L C, Burroughs A
Research Triangle Institute, North Carolina 27709, USA.
J Community Health. 1998 Feb;23(1):15-27. doi: 10.1023/a:1018718803890.
Diabetes and its associated complications and risk factors have a higher prevalence among blacks than whites. To reduce the burden of diabetes within the black community, research is needed to assess the behavioral, social, and environmental correlates associated with this disproportionate burden. Because of some well known instances of historical exploitation and abuse from medical and public health research conducted in black communities, this population has little enthusiasm for additional research, despite pressing health needs. This paper describes the process used to eliminate barriers and enhance trust between the target community and the researchers conducting a population survey of diabetes in Wake County, North Carolina. A community advisory board was organized to (1) review the survey instruments and methodologies, (2) identify persons from the community to serve as interviewers, and (3) promote the survey using the major local communication channels. The response rate to both the household survey and the comprehensive medical exam was 77%. Eighty-one percent of eligible black respondents completed the household exam and 80% completed the comprehensive medical exam. Advantages of building collaborative relationships between the community and research team are discussed.
糖尿病及其相关并发症和风险因素在黑人中的患病率高于白人。为了减轻黑人社区内糖尿病的负担，需要开展研究以评估与这种不成比例负担相关的行为、社会和环境因素。由于在黑人社区进行的医学和公共卫生研究中存在一些广为人知的历史剥削和虐待事件，尽管健康需求紧迫，但该人群对更多研究的热情不高。本文描述了在北卡罗来纳州韦克县开展糖尿病人群调查时，用于消除障碍并增强目标社区与研究人员之间信任的过程。组织了一个社区咨询委员会来（1）审查调查工具和方法，（2）从社区中挑选人员担任访谈员，以及（3）利用当地主要沟通渠道宣传该调查。家庭调查和综合医学检查的回复率均为77%。81%符合条件的黑人受访者完成了家庭检查，80%完成了综合医学检查。文中还讨论了社区与研究团队建立合作关系的优势。
