NIH Consens Statement. 1997;15(4):1-37.
To provide health care providers, patients, and the general public with a responsible assessment of the optimal practices for genetic testing for cystic fibrosis (CF).
A non-Federal, nonadvocate, 14-member panel representing the fields of genetics, obstetrics, internal medicine, nursing, social work, epidemiology, pediatrics, psychiatry, genetic counseling, bioethics, health economics, health services research, law, and the public. In addition, 21 experts from these same fields presented data to the panel and a conference audience of 500.
The literature was searched through Medline, and an extensive bibliography of references was provided to the panel and the conference audience. Experts prepared abstracts with relevant citations from the literature. Scientific evidence was given precedence over clinical anecdotal experience.
The panel, answering predefined questions, developed its conclusions based on the scientific evidence presented in open forum and the scientific literature. The panel composed a draft statement that was read in its entirety and circulated to the experts and the audience for comment. Thereafter, the panel resolved conflicting recommendations and released a revised statement at the end of the conference. The panel finalized the revisions within a few weeks after the conference.
为医疗保健提供者、患者及公众提供关于囊性纤维化（CF）基因检测最佳实践的负责任评估。
一个由14名成员组成的非联邦、非倡导性小组，成员代表遗传学、产科、内科、护理、社会工作、流行病学、儿科、精神病学、遗传咨询、生物伦理学、卫生经济学、卫生服务研究、法律及公众等领域。此外，来自这些相同领域的21位专家向该小组及500名参会者提交了数据。
通过医学在线数据库（Medline）检索文献，并向该小组及参会者提供了一份广泛的参考文献目录。专家们编写了带有文献相关引用的摘要。科学证据优先于临床轶事经验。
该小组回答预先设定的问题，基于公开论坛上呈现的科学证据及科学文献得出结论。该小组撰写了一份声明草案，全文宣读后分发给专家和参会者征求意见。此后，该小组解决了相互冲突的建议，并在会议结束时发布了一份修订声明。该小组在会议结束后的几周内完成了修订的定稿。
