Kirk S
National Primary Care Research and Development Centre, University of Manchester, UK.
Child Care Health Dev. 1998 Mar;24(2):101-14. doi: 10.1046/j.1365-2214.1998.00043.x.
Recent medical advances have led to the emergence of a group of chronically ill children who are dependent upon technology for their survival. Many of these children are cared for at home by their parents. This paper presents an overview of the literature that has examined the experiences of families caring for a technology-dependent child at home. The social, emotional and financial impact on families and their perspectives on the services supporting them at home is described. The paper concludes by identifying areas where further research is needed.
近期医学上的进展催生了一群依赖技术维持生命的慢性病患儿。这些孩子中的许多都由父母在家照料。本文概述了有关研究在家照料依赖技术的孩子的家庭经历的文献。文中描述了对家庭的社会、情感和经济影响以及他们对在家中为其提供支持的服务的看法。本文最后指出了需要进一步研究的领域。