Joyner B D, McLorie G A, Khoury A E
Department of Surgery, The Hospital for Sick Children, Toronto, Ontario, Canada.
Eur J Pediatr Surg. 1998 Feb;8(1):29-34. doi: 10.1055/s-2008-1071115.
Recent advancements in surgical and medical therapies have improved the life expectancy of children with myelomeningocele. Yet, there has been a contrasting lack of improvement with regards to sexual function and reproductive issues that continue to infantilize this population. This article identifies five major risk factors that contribute to these delays which invariably lead to irreversible emotional trauma if they are not addressed early in childhood. Adequate psychosexual education of myelomeningocele patients and their families is a tremendous societal challenge. But, only with education will there be trends away from policies of isolation to those that reinforce community integration of the physically disabled.
外科和医学治疗方面的最新进展提高了脊髓脊膜膨出患儿的预期寿命。然而，在性功能和生殖问题方面却缺乏相应的改善，这些问题持续使这一群体幼稚化。本文指出了导致这些延迟的五个主要风险因素，如果在儿童早期不加以解决，这些因素 invariably 会导致不可逆转的情感创伤。对脊髓脊膜膨出患者及其家庭进行充分的性心理教育是一项巨大的社会挑战。但是，只有通过教育，才会有从隔离政策转向加强身体残疾者社区融合政策的趋势。 （注：“invariably”原文拼写有误，正确拼写为“ invariably” ，意为“总是、 invariably 不变地” ）
