Whitney M L
J Reprod Med. 1998 Mar;43(3 Suppl):331-4.
To evaluate the coping resource of social support for women with endometriosis.
The social support experience of 46 women who participate in an endometriosis support group on the internet were examined. A questionnaire was designed to explore the social support experiences of these women in four relationship categories: spouse/partner, friends/extended family, other with endometriosis and health care providers.
The participants' responses were analyzed for themes. Overall themes that emerged from the analysis include: the participants wanted to be listened to and believed, they wanted their support network to be knowledgeable about endometriosis, they wanted others to understand the symptoms of the disease, and they wanted their support system to share information about the disease.
In general, the women with endometriosis in this study value connections to other women with endometriosis. Also, in general, these women want information from their health care providers and others in their support network. Physicians are in a good position to help these women connect to a vast network of information and support.
评估子宫内膜异位症女性的社会支持应对资源。
对46名参与网络子宫内膜异位症支持小组的女性的社会支持经历进行了调查。设计了一份问卷，以探讨这些女性在四个关系类别中的社会支持经历：配偶/伴侣、朋友/大家庭成员、其他子宫内膜异位症患者以及医疗服务提供者。
对参与者的回答进行了主题分析。分析中出现的总体主题包括：参与者希望被倾听和信任，希望其支持网络了解子宫内膜异位症，希望他人理解该疾病的症状，希望其支持系统分享有关该疾病的信息。
总体而言，本研究中的子宫内膜异位症女性重视与其他子宫内膜异位症女性的联系。此外，总体而言，这些女性希望从其医疗服务提供者和支持网络中的其他人那里获取信息。医生处于帮助这些女性连接到广泛信息和支持网络的有利位置。
