Axelsson B, Sjödén P O
Department of General Surgery, Ostersund Hospital, Sweden.
Palliat Med. 1998 Jan;12(1):29-39. doi: 10.1191/026921698676629560.
Incurable ill cancer patients (n = 37) and their spouses, while receiving support from a hospital-based palliative service, were assessed monthly regarding quality of life, using the assessment of quality of life at the end of life instrument. Lowest ratings for patients during the final six weeks were found in the following items: ability to do what one wants, physical strength, global quality of life, and meaningfulness. The pain situation was stable over time. Generally, patients were less anxious than spouses. The least-optimal items at the end of life for the patients' partners were: ability to leave the patients unattended, need for assistance with hygiene/dressing and anxiety. Meaningfulness was the item with the strongest correlation to global quality of life, for both patients and spouses. A more ambitious approach to the existential domain appears to be essential if we wish to optimize quality of life for patients within palliative care.
37名身患绝症的癌症患者及其配偶在接受医院姑息治疗服务支持的同时，每月使用临终生活质量评估工具对生活质量进行评估。在最后六周内，患者在以下项目中得分最低：做自己想做之事的能力、体力、整体生活质量和生活意义。疼痛状况随时间保持稳定。总体而言，患者比配偶焦虑程度更低。患者伴侣在临终时最不理想的项目是：让患者无人照料的能力、卫生/穿衣方面的协助需求和焦虑。对于患者和配偶来说，生活意义是与整体生活质量相关性最强的项目。如果我们希望在姑息治疗中优化患者的生活质量，那么对生存领域采取更积极的方法似乎至关重要。
