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儿科慢性病的适应轨迹:个体的重要性。

Trajectories of adaptation in pediatric chronic illness: the importance of the individual.

作者信息

Frank R G, Thayer J F, Hagglund K J, Vieth A Z, Schopp L H, Beck N C, Kashani J H, Goldstein D E, Cassidy J T, Clay D L, Chaney J M, Hewett J E, Johnson J C

机构信息

Department of Physical Medicine and Rehabilitation, University of Missouri-Columbia, USA.

出版信息

J Consult Clin Psychol. 1998 Jun;66(3):521-32. doi: 10.1037//0022-006x.66.3.521.

DOI:10.1037//0022-006x.66.3.521
PMID:9642891
Abstract

This study used individual growth modeling to examine individual difference and group difference models of adaptation. The adaptation of 27 children with juvenile rheumatoid arthritis (JRA) and 40 children with insulin-dependent diabetes mellitus (IDDM) was tracked for 18 months from diagnosis. A control group of 62 healthy children was followed over the same time period. Clustering procedures indicated that child and family adaptation could be described by a number of distinct adaptation trajectories, independent of diagnostic group membership. In contrast, parental adaptation trajectory was associated with diagnostic group membership and control over disease activity for the JRA group and with diagnostic group membership for healthy controls. The observation of common patterns across trajectory sets, as well as the finding that trajectories were differentially related to a number of variables of interest, support the use of trajectories to represent adaptation to chronic disease.

摘要

本研究采用个体生长模型来检验适应的个体差异模型和群体差异模型。对27名青少年类风湿性关节炎(JRA)患儿和40名胰岛素依赖型糖尿病(IDDM)患儿自诊断起进行了18个月的适应情况跟踪。同时对62名健康儿童组成的对照组在相同时间段内进行了随访。聚类程序表明,儿童和家庭的适应情况可以通过一些不同的适应轨迹来描述,与诊断组归属无关。相比之下,父母的适应轨迹与诊断组归属以及JRA组的疾病活动控制有关,而与健康对照组的诊断组归属有关。轨迹集之间共同模式的观察,以及轨迹与一些感兴趣变量的差异关系的发现,支持使用轨迹来表示对慢性病的适应情况。

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Trajectories of adaptation in pediatric chronic illness: the importance of the individual.儿科慢性病的适应轨迹:个体的重要性。
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