青少年类风湿性关节炎和青少年糖尿病中疾病及家族因素对适应能力的影响。
Disease and family contributors to adaptation in juvenile rheumatoid arthritis and juvenile diabetes.
作者信息
Frank R G, Hagglund K J, Schopp L H, Thayer J F, Vieth A Z, Cassidy J T, Goldstein D E, Beck N C, Clay D L, Hewett J E, Johnson J C, Chaney J M, Kashani J H
机构信息
College of Health Professions, University of Florida, Gainesville, USA.
出版信息
Arthritis Care Res. 1998 Jun;11(3):166-76. doi: 10.1002/art.1790110304.
OBJECTIVE
Research in the areas of pediatric rheumatology and pediatric chronic illness has emphasized comprehensive models of adaptation involving risk and resistance factors. This study examined adaptation, within this framework, among a large sample of children with chronic illness and children without chronic illness.
METHODS
A comprehensive battery of adaptation measures was administered to a sample of 107 children with juvenile rheumatoid arthritis, 114 children with insulin-dependent diabetes mellitus, and 88 healthy controls.
RESULTS
Medical diagnosis was associated with mothers' depression and a composite measure of parental (mother and father) distress and passive coping. Children's emotional and behavioral functioning was not related to medical diagnosis, but mothers' depression and parental distress were associated with child behavior problems.
CONCLUSION
Because parental distress was associated with child functioning, interventions to ameliorate parental distress may have beneficial effects on the children's behavior and on parents' reactions to their children.
目的
儿科风湿病学和儿科慢性病领域的研究强调了涉及风险和抵抗因素的综合适应模型。本研究在这一框架内，对大量慢性病患儿和无慢性病患儿的适应情况进行了考察。
方法
对107名青少年类风湿性关节炎患儿、114名胰岛素依赖型糖尿病患儿和88名健康对照者进行了一系列全面的适应能力测量。
结果
医学诊断与母亲的抑郁以及父母（母亲和父亲）痛苦与消极应对的综合指标相关。儿童的情绪和行为功能与医学诊断无关，但母亲的抑郁和父母的痛苦与儿童行为问题相关。
结论
由于父母的痛苦与儿童的功能相关，减轻父母痛苦的干预措施可能对儿童的行为以及父母对孩子的反应产生有益影响。
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