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[家中的慢性病患者及其对主要照料者的影响]

[The chronically ill at home and the impact in main caregivers].

作者信息

Segura Noguera J M, Bastida Bastús N, Martí Guadaño N, Riba Romeva M

出版信息

Aten Primaria. 1998 Apr 30;21(7):431-6.

PMID:9656580
Abstract

OBJECTIVE

To analyse the repercussions that caring for chronically sick patients at home can have on the health of the main carers.

DESIGN

A descriptive crossover study.

SETTING

"Raval Nord" Health District, Barcelona.

PATIENTS AND OTHER PARTICIPANTS

All the 336 chronically sick at home recorded in the home-care programme during January to March 1996. All the 236 carers identified during the same period.

MEASUREMENTS AND MAIN RESULTS

75% of the patients and 72% of those considered the main carers answered a home questionnaire. Most of the chronically ill at home were women (67%), with an average age of 81 (SD, 11). 18% presented severe disorders in the Short Portable Mental Status Questionnaire (SPMSQ), test which showed a significant relationship (p < 0.0001) with less autonomy according to the Katz index. 36% of carers remarked physical problems such as repeated back-aches and lumbago.

CONCLUSIONS

The most important disorders affecting the autonomy and mental health of chronic patients at home lead to increased psychological malaise in the career, especially if he/she is a family member.

摘要

目的

分析在家照顾慢性病患者对主要照顾者健康可能产生的影响。

设计

描述性交叉研究。

地点

巴塞罗那“拉瓦尔北区”健康区。

患者及其他参与者

1996年1月至3月家庭护理项目中记录的所有336名在家慢性病患者。同期确定的所有236名照顾者。

测量与主要结果

75%的患者及72%被视为主要照顾者的人回答了一份家庭问卷。在家慢性病患者中大多数为女性(67%),平均年龄81岁(标准差11)。18%的患者在简易便携式精神状态问卷(SPMSQ)测试中表现出严重障碍,该测试显示与根据卡茨指数衡量的自主性较低存在显著关系(p<0.0001)。36%的照顾者提到有身体问题,如反复背痛和腰痛。

结论

影响在家慢性病患者自主性和心理健康的最重要障碍会导致照顾者心理不适加剧,尤其是当照顾者为家庭成员时。

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