Harvey R, Roques P K, Fox N C, Rossor M N
Dementia Research Group, National Hospital for Neurology and Neurosurgery, London, UK.
Int J Geriatr Psychiatry. 1998 Jun;13(6):381-8. doi: 10.1002/(sici)1099-1166(199806)13:6<381::aid-gps777>3.0.co;2-m.
To audit and evaluate the introduction of a novel support service for younger people with dementia, their families and the professionals caring for them.
A retrospective review of all calls received by a telephone helpline over a 2-year period.
CANDID (Counselling and Diagnosis in Dementia) offers direct access, by telephone and e-mail, to specially trained nurse/counsellors who record the caller's query, provide emotional support and practical advice. In addition to general advice, clinical details are held for patients registered with the service so that the advice given can be tailored to the patient's specific need and routed via the general practitioner for action. Advice is reviewed by a consultant neurologist and psychiatrist.
Callers to the CANDID helpline, who made a total of 1,121 calls.
Details of the caller and of the patient they were caring for. Reason for calling and advice given to the caller
Of the 1,121 calls received during the first 2 years of operation, 547 were 'registered' calls relating to 241 individual patients where more specific advice could be given through the GP. The remaining 574 'generic' calls were from members of the public and healthcare professionals who had heard about the service and were seeking information and advice. Reasons for calls were divided into three broad categories: general information; clinical advice; and advice on social issues. Among the registered callers, 50% of calls were for clinical advice. Letters were sent to GPs on 67 occasions; 48 (56%) provided information only for the GP, 16 (24%) advised a secondary referral and eight (12%) advised on the use of specific medication.
The service has become rapidly accepted and used by families of patients and members of the public. Healthcare professionals have made less use of the service than anticipated, but it is hoped that this will increased as information about the service becomes disseminated.
审核并评估一项针对年轻痴呆症患者、其家人以及照料他们的专业人员推出的新型支持服务。
对一条电话求助热线在两年期间接到的所有来电进行回顾性审查。
CANDID（痴呆症咨询与诊断）通过电话和电子邮件为经过专门培训的护士/咨询师提供直接联系方式，这些人员会记录来电者的问题，提供情感支持和实用建议。除了一般性建议外，还为在该服务机构注册的患者保留临床详细信息，以便所提供的建议能够根据患者的具体需求进行调整，并通过全科医生转交给相关人员采取行动。建议由神经科顾问医生和精神科医生进行审核。
拨打CANDID求助热线的来电者，他们共拨打了1121次电话。
来电者及其照料患者的详细信息。来电原因以及给予来电者的建议。
在运营的前两年接到的1121次电话中，547次为“注册”电话，涉及241名个体患者，通过全科医生可提供更具体的建议。其余574次“一般性”电话来自公众和医疗保健专业人员，他们听说了该服务并寻求信息和建议。来电原因分为三大类：一般信息；临床建议；以及社会问题建议。在注册来电者中，50% 的电话是寻求临床建议。向全科医生发送了67次信件；48次（56%）仅为全科医生提供信息，16次（24%）建议进行二次转诊，8次（12%）就特定药物的使用提供建议。
该服务已迅速被患者家属和公众所接受和使用。医疗保健专业人员对该服务的使用比预期少，但希望随着该服务信息的传播，使用量会增加。
