Murphy Debra A, Roberts Kathleen Johnston, Herbeck Diane M
Health Risk Reduction Projects, Integrated Substance Abuse Programs, Department of Psychiatry, University of California at Los Angeles, 11075 Santa Monica Blvd., Suite 200, Los Angeles, CA 90025 USA.
J Child Fam Stud. 2011 Jun;20(3):361-369. doi: 10.1007/s10826-010-9400-9. Epub 2010 Jul 24.
Adjusting to chronic illness is very complicated for families with children, as they are already faced with the challenge of development and childrearing. In this study, qualitative interviews were conducted with HIV positive mothers on a number of issues related to being an HIV positive mother raising young children. One topic of the interview was whether or not they felt that HIV had caused them to miss activities with their children while the children were growing up, what types of activities they had missed, the age of the child for each example, and how HIV had led to missing these activities. Interviews were conducted in 2008 with a random sample of 57 mothers being followed in a longitudinal assessment study. All study participants were English or Spanish speaking. Mean age was 44.1 (SD = 5.6) years; 47% were Latina; 35% African American; 11% White; and 7% other race. About 60% of the mothers disclosed that their HIV status had caused them to miss out on activities with their children while their children were growing up, ranging from daily care activities to major school and extra-curricular activities. Some mothers missed significant amounts of time with their children due to hospitalizations. In some cases mothers felt forced into a choice between mothering ability and their own health, including adherence to medications. Implications for the mothers and the children are discussed.
对于有孩子的家庭来说，适应慢性病非常复杂，因为他们已经面临着孩子成长和养育的挑战。在这项研究中，对感染艾滋病毒的母亲就一些与抚养幼儿的艾滋病毒阳性母亲相关的问题进行了定性访谈。访谈的一个主题是，她们是否觉得艾滋病毒导致她们在孩子成长过程中错过与孩子的活动，她们错过的活动类型、每个例子中孩子的年龄，以及艾滋病毒是如何导致错过这些活动的。2008年对在一项纵向评估研究中随访的57名母亲进行了随机抽样访谈。所有研究参与者都讲英语或西班牙语。平均年龄为44.1（标准差=5.6）岁；47%是拉丁裔；35%是非裔美国人；11%是白人；7%是其他种族。约60%的母亲表示，她们的艾滋病毒感染状况导致她们在孩子成长过程中错过与孩子的活动，从日常照料活动到主要的学校和课外活动。一些母亲因住院而错过与孩子相处的大量时间。在某些情况下，母亲们感到被迫在育儿能力和自身健康（包括坚持服药）之间做出选择。文中讨论了这对母亲和孩子的影响。
