Velarde-Jurado Elizabeth, Avila-Figueroa Carlos
Hospital Infantil de México Federico Gómez, México, D.F., México.
Salud Publica Mex. 2002 Jul-Aug;44(4):349-61.
This paper reviews the methods and principles for quality of life assessment. The aging of the population and the improved survival of people with acute and chronic conditions have produced several levels of disability requiring long-term treatment and rehabilitation. In 1948 the World Health Organization defined health as not merely the absence of disease but rather a state of complete physical, mental, and social well being. This term evolved from its conceptual definition to the development of scales to measure the quality of life beyond physical status. Thus, quality of life assessment includes areas such as mental health, social support, and life satisfaction. It is recognized that the expectations, vitality, pain, disability, and personal experiences influence the perception of a person's general health. A composite measurement aimed to quantify health according to physical, mental, and social well being simultaneously would likely find people at different points on the three different continua, but in the midranges of the composite. The multidimensionality problems and the level of subjectivity involved in the assessment of the quality of life require valid and reliable instruments. This paper present an inventory of 126 questionnaires aimed to measure the quality of life for several diseases and populations. A better understanding of the methods to assess the quality of life will allow the incorporation of these instruments in the comprehensive assessment of patients, into clinical trials, and for health services research. The English version of this paper is available at: http://www.insp.mx/salud/index.html.
本文综述了生活质量评估的方法和原则。人口老龄化以及急慢性疾病患者生存率的提高导致了多种残疾程度,需要长期治疗和康复。1948年,世界卫生组织将健康定义为不仅仅是没有疾病,而是一种身体、心理和社会完全健康的状态。这个术语从其概念定义发展到开发量表以衡量身体状况之外的生活质量。因此,生活质量评估包括心理健康、社会支持和生活满意度等领域。人们认识到,期望、活力、疼痛、残疾和个人经历会影响对一个人总体健康的认知。一个旨在根据身体、心理和社会福祉同时量化健康的综合测量方法可能会发现人们处于这三个不同连续体的不同点,但处于综合测量的中间范围。生活质量评估中涉及的多维问题和主观程度需要有效且可靠的工具。本文列出了126份问卷清单,旨在测量几种疾病和人群的生活质量。更好地理解生活质量评估方法将有助于将这些工具纳入患者的综合评估、临床试验以及卫生服务研究中。本文的英文版本可在以下网址获取:http://www.insp.mx/salud/index.html。