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[评估生活质量的方法学考量]

[Methodological considerations for evaluating quality of life].

作者信息

Velarde-Jurado Elizabeth, Avila-Figueroa Carlos

机构信息

Hospital Infantil de México Federico Gómez, Doctor Márquez 162, Delegación Cuauhtémoc, 06720, México, D. F., México.

出版信息

Salud Publica Mex. 2002 Sep-Oct;44(5):448-63.

Abstract

This paper reviews the methods and principles for quality of life assessment. The aging of the population and the improved survival of people with acute and chronic conditions have produced several levels of disability requiring long-term treatment and rehabilitation. In 1948 the World Health Organization defined health as not merely the absence of disease but rather a state of complete physical, mental, and social well being. This term evolved from its conceptual definition to the development of scales to measure the quality of life beyond physical status. Thus, quality of life assessment includes areas such as mental health, social support, and life satisfaction. It is recognized that the expectations, vitality, pain, disability, and personal experiences influence the perception of a person's general health. A composite measurement aimed to quantify health according to physical, mental, and social well being simultaneously would likely include people at clearly different points on the three different continua, but in the midranges of the composite. The multidimensionality problems and the level of subjectivity involved in the assessment of the quality of life require valid and reliable instruments. This paper present an inventory of 126 questionnaires aimed to measure the quality of life for several diseases and populations. A better understanding of the methods to assess the quality of life will allow the incorporation of these instruments in the comprehensive assessment of patients, into clinical trials, and for health services research.

摘要

本文综述了生活质量评估的方法和原则。人口老龄化以及急慢性疾病患者生存率的提高导致了不同程度的残疾,需要长期治疗和康复。1948年,世界卫生组织将健康定义为不仅仅是没有疾病,而是一种身体、心理和社会完全健康的状态。这一概念从其定义发展到用于测量超越身体状况的生活质量的量表。因此,生活质量评估包括心理健康、社会支持和生活满意度等方面。人们认识到,期望、活力、疼痛、残疾和个人经历会影响对一个人总体健康的认知。一个旨在根据身体、心理和社会健康状况同时量化健康的综合测量方法,可能会涵盖处于这三个不同连续体上明显不同点但处于综合测量中间范围的人群。生活质量评估中涉及的多维问题和主观程度需要有效且可靠的工具。本文列出了126份旨在测量几种疾病和人群生活质量的问卷清单。更好地理解生活质量评估方法将有助于把这些工具纳入患者的综合评估、临床试验以及卫生服务研究中。

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