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[女性历程。对接受妇科和乳腺癌治疗的女性及其医疗团队进行的意见调查]

[Parcours de femmes. Opinion survey carried out among women treated for gynecologic and breast cancers and their medical care teams].

作者信息

Serin D, Pujol H, Schraub S, Chevalier H

机构信息

Clinique Sainte-Catherine, chemin du Lavarin, Avignon.

出版信息

Bull Cancer. 1998 Jun;85(6):578-88.

PMID:9752285
Abstract

The opinion survey "Parcours de femmes" initiated in partnership with Bristol-Myers Squibb was conducted by la Ligue nationale contre le cancer between November 1993 and May 1995 and by Sofres Institute. The aim of the study was to increase knowledge of experience of feminine cancers, both by patients and by different treatment teams. Two thousand eight hundred and seventy-four women treated for one of these diseases answered anonymously on a form with sixty-eight questions. Eighty-one individual interviews gave the opinion of the general practitioners and specialists concerned, as well as nursing and hospital staff, pharmacists, health leaders in the private or public fields. The results of this opinion survey highlight and confirm needs, deficiencies, and aspirations of everyone involved. The data show the importance of information, explanations and dialogue at every stage of the disease. The data specify the lines of support to be developed: calming distress, stimulating hope and the will to recover. They also indicate a need for psychological support outside the family and the medical environment as well as for treatment teams. The necessity to improve the hospital environment as well as access to maternal aid during and after treatment to make reinsertion easier are also demonstrated. Apart from associations and help services (such as home care), institutionals do not all have the same sensitivity expect to this pathology. Many people consider it has nothing specific in comparison to other pathologies or to other women in difficulties. They reject the idea of implementing specific measures and valorize research and prevention actions.

摘要

与百时美施贵宝公司合作发起的“女性历程”民意调查,于1993年11月至1995年5月期间由法国抗癌联盟和索福瑞调查机构开展。该研究旨在增进患者及不同治疗团队对女性癌症经历的了解。2874名因这些疾病之一接受治疗的女性以匿名方式回答了一份包含68个问题的问卷。81次个人访谈收集了相关全科医生、专科医生以及护理和医院工作人员、药剂师、私营或公共领域健康领域领导者的意见。此次民意调查结果突出并确认了所有相关人员的需求、不足及期望。数据显示了在疾病各个阶段提供信息、解释和对话的重要性。数据明确了应开展的支持方向:缓解痛苦、激发希望和康复意愿。数据还表明在家庭和医疗环境之外以及治疗团队方面都需要心理支持。改善医院环境以及在治疗期间和之后获得母婴援助以使重新融入社会更容易的必要性也得到了证明。除了协会和帮助服务(如家庭护理)外,机构对这种病症并非都有同样的敏感度。许多人认为与其他病症或其他处于困境的女性相比,它没有什么特别之处。他们拒绝实施具体措施的想法,并重视研究和预防行动。

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