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系统性红斑狼疮的生活质量

Quality of life in systemic lupus erythematosus.

作者信息

Lash A A

机构信息

Northern Illinois University, De Kalb, USA.

出版信息

Appl Nurs Res. 1998 Aug;11(3):130-7. doi: 10.1016/s0897-1897(98)80132-8.

Abstract

This study reports the impact of systemic lupus erythematosus (SLE) on the quality of life of 37 SLE patients by using two quality of life (QOL) instruments, the Sickness Impact Profile and the Arthritis Impact Measurement Scale 2. Findings suggested that SLE affects all areas that are considered essential for QOL including alertness behavior, recreation/pastime, sleep and rest, home management, social interaction, and emotional balance. Findings suggest that in the management of chronic illnesses such as SLE, QOL assessments may provide health care professionals with data that would enhance the likelihood of designing holistic interventions.

摘要

本研究通过使用两种生活质量(QOL)工具,即疾病影响量表和关节炎影响测量量表2,报告了系统性红斑狼疮(SLE)对37例SLE患者生活质量的影响。研究结果表明,SLE会影响所有被认为对生活质量至关重要的领域,包括警觉行为、娱乐/消遣、睡眠与休息、家庭管理、社交互动和情绪平衡。研究结果表明,在SLE等慢性病的管理中,生活质量评估可能会为医护人员提供数据,从而增加设计整体干预措施的可能性。

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