Department of Medicine, Division of Rheumatology, Rosalind Russell Medical Research Center for Arthritis, University of California, UCSF Box 0920, San Francisco, CA 94143-0920, USA.
Rheum Dis Clin North Am. 2010 Feb;36(1):15-32, vii. doi: 10.1016/j.rdc.2009.12.006.
This article assesses the effect of systemic lupus erythematosus (SLE) on the shealth-related quality of life (HRQOL) and employment of persons with this condition. Far more than impaired health status can affect an individual's quality of life. The term "health-related quality of life" is used to connote the decrement in an individual's quality of life specifically attributable to a decrease in health status. The article presents evidence on employment because this plays a crucial role in determining the quality of life of most Americans of normal working age. However, evidence is also presented with respect to other domains of activity, because most people work to live but not many live to work.
本文评估了系统性红斑狼疮 (SLE) 对患者健康相关生活质量 (HRQOL) 和就业的影响。影响个人生活质量的因素远不止健康状况的恶化。“健康相关生活质量”一词是指由于健康状况下降而导致个人生活质量下降。本文介绍了与就业相关的证据,因为这对于大多数处于正常工作年龄的美国人的生活质量起着至关重要的作用。然而,本文也提供了其他活动领域的证据,因为大多数人工作是为了生活,而不是为了工作而生活。