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临终时的福祉:第1部分。从患者角度看心理社会与精神关怀的研究议程。

Well-being at the end of life: Part 1. A research agenda for psychosocial and spiritual aspects of care from the patient's perspective.

作者信息

Cohen S R, Bultz B D, Clarke J, Kuhl D R, Poulson M J, Baldwin M K, Mount B M

机构信息

Department of Oncology, McGill University, Montreal, Que.

出版信息

Cancer Prev Control. 1997 Dec;1(5):334-42.

PMID:9765755
Abstract

This article reviews the scientific literature concerning psychosocial and spiritual aspects of palliative care for the patient with cancer. It discusses 4 separate areas: the continuum of care, communication, spiritual and psychological issues, and psychotherapeutic and behavioural management of physical symptoms. Most of the research could be classified as fundamental according to the Cancer Control Framework of the National Cancer Institute of Canada. In some areas, even fundamental research was lacking. There is a need for clearer and more relevant definitions of the desired outcomes of interventions and also for the development of appropriate quantitative and qualitative methods. We must determine which interventions can be initiated earlier in the disease trajectory and can provide benefit at the palliative phase. Given the burden of suffering that palliative care aims to address, relatively little research in this area has been conducted.

摘要

本文综述了有关癌症患者姑息治疗的社会心理和精神层面的科学文献。它讨论了4个不同领域:护理的连续性、沟通、精神和心理问题,以及身体症状的心理治疗和行为管理。根据加拿大国家癌症研究所的癌症控制框架,大多数研究可归类为基础研究。在某些领域,甚至缺乏基础研究。需要对干预的预期结果有更清晰、更相关的定义,还需要开发适当的定量和定性方法。我们必须确定哪些干预措施可以在疾病进程中更早地启动,并在姑息治疗阶段带来益处。鉴于姑息治疗旨在解决的痛苦负担,该领域的相关研究相对较少。

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Cancer Prev Control. 1997 Dec;1(5):334-42.
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引用本文的文献

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Spiritual Interventions Delivered by Nurses to Address Patients' Needs in Hospitals or Long-Term Care Facilities: A Systematic Review.护士在医院或长期护理机构提供的精神干预措施以满足患者需求:系统评价。
J Palliat Med. 2022 Apr;25(4):662-677. doi: 10.1089/jpm.2021.0578. Epub 2022 Jan 26.
2
Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers.家庭照顾者负担:一项乳腺癌患者及其主要照顾者的纵向研究结果
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