Hinoki K W
Children's Hospital Los Angeles 90027, USA.
Neonatal Netw. 1998 Aug;17(5):7-10.
Treatment of the child with congenital heart disease continues to challenge the medical profession. Although advances in technology have improved survival statistics over the past two decades, dealing with the effects on the family of the birth of a child with congenital heart disease has received minimal attention. Most nursing interventions focus on the immediate needs of the family related to the death of their child. Nurses must increase their awareness of the effects of the diagnosis itself on the family. To better help the family in crisis, nurses must understand the concept of death of the "normal" child and must also recognize the effects this diagnosis can have on personal relationships.
先天性心脏病患儿的治疗仍然是医学界面临的挑战。尽管在过去二十年中技术进步改善了生存统计数据，但对于先天性心脏病患儿出生对家庭的影响却很少受到关注。大多数护理干预措施都集中在家庭与孩子死亡相关的即时需求上。护士必须提高对诊断本身对家庭影响的认识。为了更好地帮助处于危机中的家庭，护士必须理解“正常”孩子死亡的概念，还必须认识到这种诊断对人际关系可能产生的影响。
