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[儿童和青少年时期癌症的家庭应对。采用自我评估方法进行标准化评估的可能性:一项实证性试点研究的结果]

[Familial coping with cancer in childhood and adolescence. Possibilities for standardized assessment with a self-assessment method: results of an empirical pilot study].

作者信息

Goldbeck L

机构信息

Universitäts-Kinderklinik Ulm.

出版信息

Prax Kinderpsychol Kinderpsychiatr. 1998 Oct;47(8):552-73.

PMID:9847637
Abstract

44 parents of pediatric oncology patients answered mailed questionnaires about their own coping and about their sick children's coping and bodily complaints during oncological therapy. Most of the families coped well from parents' view. The dominant coping style of the parents consisted of active, problem-focused coping strategies in combination with an optimistic basic attitude, maintainance of family cohesion and belief in god or search for a meaning of the illness. The children and adolescents used predominantly adaptive coping strategies. The parental problem-group with a predominantly maladaptive coping-style reported low family cohesion, high depression, high wishful thinking and minimization. The maladaptive children and adolescents were rated as more socially withdrawing, more irritable, less optimistic and competent as well as less compliant. Strong correlations were found between parents' and their children's coping. Problem families with a special need for psychosocial support can early be identified by the coping questionnaires used in this study. Prospective longitudinal studies with multi-methodal and multi-perspective designs should be conducted to reach a better understanding of the family coping process in case of childhood and adolescence cancer.

摘要

44名儿科肿瘤患者的家长回复了邮寄的问卷,内容涉及他们自己在肿瘤治疗期间的应对方式,以及患病子女的应对方式和身体不适情况。从家长的角度来看,大多数家庭应对良好。家长们主要的应对方式包括积极的、以问题为导向的应对策略,同时保持乐观的基本态度、维持家庭凝聚力以及信仰上帝或探寻疾病的意义。儿童和青少年主要采用适应性应对策略。以适应不良应对方式为主的家长问题组报告称家庭凝聚力低、抑郁程度高、愿望思维强烈且存在淡化问题的情况。适应不良的儿童和青少年被评定为社交退缩更严重、更易怒、不太乐观且能力较弱,同时依从性也较差。研究发现家长和孩子的应对方式之间存在很强的相关性。通过本研究中使用的应对问卷,可以早期识别出有特殊心理社会支持需求的问题家庭。应该开展具有多方法和多视角设计的前瞻性纵向研究,以便更好地理解儿童和青少年患癌症情况下的家庭应对过程。

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