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[痴呆症患者的家庭护理:特定压力维度对照顾者幸福感及家庭护理状况稳定性的差异意义]

[Family care of patients with dementia: differential significance of specific stress dimensions for the well-being of caregivers and the stability of the home nursing situation].

作者信息

Schacke C, Zank S

出版信息

Z Gerontol Geriatr. 1998 Oct;31(5):355-61. doi: 10.1007/s003910050059.

DOI:10.1007/s003910050059
PMID:9848244
Abstract

In Germany more than 60% of those elderly who suffer from dementia are being cared for by family members within the community. The objective conditions are perceived as extremely burdensome by many caregivers and can seriously affect their psychological and physical well-being. The aim of this study was to discrimininatively analyze the meaning of various dimensions of burden for the carers' well-being and the stability of the caregiving situation. Thus, an explicit distinction is made between caregiver burden which directly refers to the situation and the more general concept of well-being which is potentially, but not necessarily, affected by the caregiving situation. Caregivers' life satisfaction, self-esteem, and their subjective perception of the stability of the caregiving situation (subjective probability of patient's institutionalization within the next 12 months) were regarded as indicators for potential outcomes of caregiving. Regression analysis revealed that to the caregiver's life satisfaction perceived role conflicts are most significant. For the caregiver's self-esteem patient's objective cognitive impairment is decisive. Here the direction of the relation is remarkable: The more severe the patient's impairment, the higher the caregiver's self-esteem. Regarding the stability of the caregiving situation the perceived inadequacy of caregiving resources proves to be of prime importance. Results suggest that a differentiated examination of the complex relations between specific dimensions of burden and potential caregiving outcomes is an adaquate approach to a deeper understanding of the consequences of family caregiving.

摘要

在德国,超过60%的老年痴呆症患者由社区内的家庭成员照料。许多照料者认为客观条件极其繁重,会严重影响他们的身心健康。本研究的目的是区分性地分析负担的各个维度对照料者幸福感和照料状况稳定性的意义。因此,明确区分了直接指涉照料状况的照料者负担,以及可能但不一定受照料状况影响的更一般的幸福感概念。照料者的生活满意度、自尊以及他们对照料状况稳定性的主观认知(患者在未来12个月内入住机构的主观概率)被视为照料潜在结果的指标。回归分析表明,对照料者的生活满意度而言,感知到的角色冲突最为显著。对于照料者的自尊来说,患者的客观认知障碍起决定性作用。这里关系的方向值得注意:患者的障碍越严重,照料者的自尊越高。关于照料状况的稳定性,照料资源的感知不足被证明至关重要。结果表明,对负担的特定维度与潜在照料结果之间的复杂关系进行差异化考察,是更深入理解家庭照料后果的适当方法。

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[Stability of home based care arrangements for people with dementia : Development of a consensus definition of stability using expert focus groups].
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