Andrén Signe, Elmståhl Sölve
Division of Geriatric Medicine, Department of Community Medicine, Lund University, Malmö University Hospital, Malmö, Sweden.
Scand J Caring Sci. 2005 Jun;19(2):157-68. doi: 10.1111/j.1471-6712.2005.00328.x.
Family caregivers experience both positive and negative reactions in caregiving situations. There has been considerably less published about the positive aspects, however. The general aim of this study was to explore a previously developed instrument to study rewards gained by caregivers and to determine the factors associated with satisfaction in family members caring for patients with dementia living at home. The study group consisted of 153 such family members. Standardized interview schedules exploring different background characteristics, and instruments for assessment of the degree of dementia in the patients and the caregivers' total burden and degree of satisfaction were used. Factorial analysis of the Caregiver's Assessment of Satisfactions Index was performed and it became more specific for conditions of dementia when it was reduced. Stressors as measured by the Caregiver Burden scale and satisfaction can coexist and assess different aspects of the caregiver's situation. The caregiver can perceive both moderate burden and great satisfaction at the same time, and further studies may help to broaden our understanding of how we can reduce the degree of burden whilst increasing the sense of satisfaction.
家庭照顾者在照顾过程中会经历积极和消极的反应。然而，关于积极方面的公开报道要少得多。本研究的总体目标是探索一种先前开发的工具，以研究照顾者获得的回报，并确定与在家照顾痴呆症患者的家庭成员满意度相关的因素。研究组由153名此类家庭成员组成。使用了探索不同背景特征的标准化访谈时间表，以及评估患者痴呆程度、照顾者总负担和满意度的工具。对照顾者满意度指数评估进行了因子分析，简化后对痴呆症情况更具针对性。照顾者负担量表所衡量的压力源和满意度可以并存，并评估照顾者状况的不同方面。照顾者可以同时感受到适度的负担和极大的满足感，进一步的研究可能有助于拓宽我们对如何在增加满足感的同时减轻负担程度的理解。
