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儿童哮喘管理项目患者教育中心的设计与实施。儿童哮喘管理项目研究小组。

Design and implementation of a patient education center for the Childhood Asthma Management Program. Childhood Asthma Management Program Research Group.

出版信息

Ann Allergy Asthma Immunol. 1998 Dec;81(6):571-81.

PMID:9892029
Abstract

OBJECTIVES

To design, develop, and distribute asthma education materials relevant to the Childhood Asthma Management Program (CAMP), a National Heart, Lung and Blood Institute sponsored comprehensive clinical trial. This trial is designed to evaluate the relative efficacy of three treatment strategies on asthma control, and lung growth and development in children with asthma.

APPROACH

A Patient Education Center (PEC) was established to prepare CAMP-specific asthma educational materials that would promote consistent implementation of the CAMP protocol, adherence to study medications and record keeping requirements and retention in the trial. The PEC has the responsibility to design the asthma education program and to provide support to the study clinical center coordinators/educators who maintain direct and ongoing contact with the participants.

PARTICIPANTS

A total of 1,041 children with asthma age 5 through 12 years were enrolled in the trial between November 1993 and September 1995 at 8 clinical centers.

PROCESS

The three major tenets of self-management were highlighted in the CAMP patient education program: anticipate problems before they arise, determine the appropriate responses, and rehearse and practice behaviors that are effective solutions. CAMP education was standardized across centers to provide consistency in the implementation of the protocol. The program was structured to be comprehensive in order to address the various issues encountered by the participants and their caretakers, including background information on asthma and asthma therapy, instructions on following the study protocol (taking medication and monitoring symptoms and peak flow), and clear steps for handling asthma exacerbations. Materials were prepared in the form of handouts, handbooks, and videos. Instructional manuals were also prepared on the use of these materials for the nurse coordinators at each clinical center.

CONCLUSIONS

The CAMP approach to asthma education was planned with the realization that patient education is essential to successful treatment and must be fully integrated into the patient's routine care. The CAMP education materials are readily available in a national repository and could be used for asthma education programs in a practice setting or another clinical research effort.

摘要

目的

设计、开发并分发与儿童哮喘管理项目(CAMP)相关的哮喘教育材料,该项目是由美国国立心肺血液研究所赞助的一项综合性临床试验。该试验旨在评估三种治疗策略对哮喘控制以及哮喘儿童肺部生长发育的相对疗效。

方法

设立了一个患者教育中心(PEC),以编写针对CAMP的哮喘教育材料,这些材料将促进CAMP方案的一致实施、对研究药物的依从性以及记录保存要求,并确保患者留在试验中。PEC负责设计哮喘教育项目,并为与参与者保持直接和持续联系的研究临床中心协调员/教育工作者提供支持。

参与者

1993年11月至1995年9月期间,共有1041名5至12岁的哮喘儿童在8个临床中心参加了该试验。

过程

CAMP患者教育项目突出了自我管理的三个主要原则:在问题出现之前预见问题、确定适当的应对措施,以及演练和实践作为有效解决方案的行为。CAMP教育在各中心实现了标准化,以确保方案实施的一致性。该项目的结构设计得很全面,以便解决参与者及其照顾者遇到的各种问题,包括哮喘和哮喘治疗的背景信息、遵循研究方案的说明(服药以及监测症状和峰流速),以及处理哮喘发作的明确步骤。材料以手册、指南和视频的形式编写。还为每个临床中心的护士协调员编写了关于如何使用这些材料的指导手册。

结论

CAMP的哮喘教育方法是在认识到患者教育对于成功治疗至关重要且必须完全融入患者日常护理的基础上制定的。CAMP教育材料在一个国家资料库中很容易获取,可用于实际环境中的哮喘教育项目或其他临床研究工作。

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