• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

患者即专家。

Der Patient als Experte.

作者信息

Dubs L

出版信息

Forsch Komplementarmed. 1998;5 Suppl S1:90-95. doi: 10.1159/000057326.

DOI:10.1159/000057326
PMID:9892837
Abstract

Patients as Experts: Determining Benefit by Using Assessments of Ability (ICIDH)When health economy and quality mangement are dealing with the cost-benefit relationship, to this day description, calculation, and assessment of the benefit are missing to a great extent. Deliberations in terms of cause and effect do not go beyond the model of pathogenesis (etiology - pathology - manifestation) and descriptions on the organ level (ICD). Only the international classification of impairments, disabilities, and handicaps (ICIDH) as a separate estimation of the resulting manifestations of illness on the levels of organ, individual, and society is capable to elucidate this benefit. It is the patient who is the expert to decide what he needs, what he wants, and what he can do, thus, evaluating on an individual level his loss of capability. The ICIDH is regarded as the key for the management of chronic diseases. The characteristics of being chronically ill require the integration of salutogenesis and the consideration of the hierarchy of needs. The specially developed MARA model serves as pragmatic basis for the description of the benefits of carried out and omitted interventions as changes of abilities by using the MARA curve (mean age-related ability) as ethical guideline. In quality circles the MARA model, which is based on ICIDH, hierarchy of needs and salutogenesis, can offer apatient-oriented basis of discussion for benefit assessments, and, in a pragmatical way, it can facilitate the introduction of evidence-based medicine. By the change of view from the organ level with multifactorial aspects to the individual level, in which the abilities can be understood as a monofactor, a high consensus potential between several participants of discussion in health service is possible.

摘要

患者即专家

通过能力评估(ICIDH)确定益处

当卫生经济与质量管理处理成本效益关系时,时至今日,在很大程度上仍缺乏对益处的描述、计算和评估。因果关系的讨论并未超出发病机制模型(病因 - 病理 - 表现)以及器官层面的描述(国际疾病分类)。只有国际功能、残疾和健康分类(ICIDH)作为对疾病在器官、个体和社会层面所产生表现的单独评估,才能够阐明这种益处。患者才是决定自身需求、愿望以及所能做之事的专家,从而在个体层面评估其能力丧失情况。ICIDH被视为慢性病管理的关键。慢性病的特点要求整合健康促进并考虑需求层次。专门开发的MARA模型以MARA曲线(平均年龄相关能力)作为伦理准则,作为通过能力变化来描述已实施和未实施干预措施益处的实用基础。在质量改进小组中,基于ICIDH、需求层次和健康促进的MARA模型可为益处评估提供以患者为导向的讨论基础,并且以务实的方式促进循证医学的引入。通过从具有多因素的器官层面视角转变为将能力视为单一因素的个体层面视角,卫生服务中多个讨论参与者之间可能达成高度的共识。

相似文献

1
Der Patient als Experte.患者即专家。
Forsch Komplementarmed. 1998;5 Suppl S1:90-95. doi: 10.1159/000057326.
2
[The patient as expert--introduction to evidence-based orthopedics].
Z Orthop Ihre Grenzgeb. 2000 Jul-Aug;138(4):289-94. doi: 10.1055/s-2000-10150.
3
[Everything was done--patient still not satisfied: introduction to evidence-based surgery].
Swiss Surg. 1999;5(4):160-6. doi: 10.1024/1023-9332.5.4.160.
4
[Is the ICIDH (International Classification of Impairments, Disabilities and Handicaps) suitible for geriatric rehabilitation?].《国际功能、残疾和健康分类》(ICIDH)是否适用于老年康复?
Z Gerontol Geriatr. 2001 May;34 Suppl 1:30-5. doi: 10.1007/s003910170005.
5
Measuring the consequences of illness.
World Health Stat Q. 1989;42(3):115-21.
6
Quality of life and the ICIDH: towards an integrated conceptual model for rehabilitation outcomes research.
Clin Rehabil. 1999 Feb;13(1):5-15. doi: 10.1191/026921599701532072.
7
The ICIDH: evolution, status, and prospects.《国际功能、残疾和健康分类》:演变、现状与前景
Disabil Rehabil. 1995 Apr-Jun;17(3-4):112-8. doi: 10.3109/09638289509166705.
8
The ICIDH: health problems in a medical and social perspective.
Disabil Rehabil. 1995 Apr-Jun;17(3-4):128-34. doi: 10.3109/09638289509166707.
9
[Profile comparison systems and performance diagnostic, electronic data processing-supported technology--their use in improving responses to social medicine questions and expert assessments and planning of rehabilitation measures].
Rehabilitation (Stuttg). 2000 Feb;39(1):56-64.
10
Procedures and methods of benefit assessments for medicines in Germany.德国药品效益评估的程序和方法。
Eur J Health Econ. 2008 Nov;9 Suppl 1:5-29. doi: 10.1007/s10198-008-0122-5.