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儿童癌症侵入性治疗过程中家长的应对方式与儿童的痛苦行为

Parent coping and child distress behaviors during invasive procedures for childhood cancer.

作者信息

LaMontagne L L, Wells N, Hepworth J T, Johnson B D, Manes R

机构信息

School of Nursing, Vanderbilt University, Nashville, TN 37240-0008, USA.

出版信息

J Pediatr Oncol Nurs. 1999 Jan;16(1):3-12. doi: 10.1177/104345429901600102.

Abstract

This study examines what parents identified as their primary stressor before their child's invasive procedure, what coping strategies were used to manage the stress, what level of distress their children experienced during each phase of the procedure, and whether parents' coping modes were associated with their children's distress. Twenty children with cancer from 3 to 11 years of age and the parent present during the procedure participated in the study. Parents' primary stressors were identified as uncertainty about parent role and anticipating the child's distress during the procedure. Although parents used both emotion-focused and problem-focused strategies for coping with their primary stressors, they primarily relied on emotion-focused strategies. Children experienced the most behavioral distress during the procedural phase, and girls exhibited more distress than boys. The parents' coping modes were not associated with their children's distress, but children of parents whose primary stressor was uncertainty about parent role had higher distress than children of parents whose primary stressor was anticipating the child's distress. The findings related to parents' stressors, their coping strategies, and their children's distress were consistent with previous research. Directions for future research and suggestions for dealing with invasive procedures for childhood cancer are described.

摘要

本研究调查了家长们在孩子接受侵入性治疗前确定的主要压力源是什么,他们采用了哪些应对策略来应对压力,孩子在治疗各阶段经历了何种程度的痛苦,以及家长的应对方式是否与孩子的痛苦有关。20名3至11岁的癌症患儿及其在治疗过程中在场的家长参与了该研究。家长们的主要压力源被确定为对家长角色的不确定以及对孩子在治疗过程中痛苦的预期。尽管家长们使用了以情绪为中心和以问题为中心的策略来应对主要压力源,但他们主要依赖以情绪为中心的策略。孩子们在治疗阶段经历的行为痛苦最多,且女孩表现出的痛苦比男孩更多。家长的应对方式与孩子的痛苦无关,但主要压力源是对家长角色不确定的家长的孩子,比主要压力源是对孩子痛苦预期的家长的孩子有更高的痛苦程度。与家长压力源、应对策略及孩子痛苦相关的研究结果与先前研究一致。文中还描述了未来研究的方向以及应对儿童癌症侵入性治疗的建议。

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