Kemper K J, Cassileth B, Ferris T
Center for Holistic Pediatric Education and Research, Children's Hospital and Harvard Medical School, Boston, MA, USA.
Pediatrics. 1999 Apr;103(4 Pt 2):902-9.
Increasing numbers of American families seek complementary and alternative medical care (CAM) for their children; at the same time health care organization and financing are undergoing radical changes. The combination of these factors provides a powerful incentive for research on the effectiveness and safety of CAM therapies and their role in treating children. This article describes a rationale, spectrum, priorities, and methodologies for a research agenda in holistic pediatrics. The top priorities are clinical research projects addressing the safety and effectiveness of alternative therapies used for vulnerable children suffering from serious illnesses. Additionally, major research questions involve the impact of the various definitions such as "alternative," "complementary," "folk," "integrative," and "holistic" medicine on perceptions of health care, professional education, and funding of products and services. Research efforts in alternative therapies need to address explicitly the tremendous heterogeneity between and among the practices, beliefs, and providers of professional and lay services. Qualitative ethnographic research is needed to understand the consequences of diverse explanatory models and meanings of health and illness for patient-provider communication, adherence with professional recommendations, and satisfaction with care. Health services researchers need to address questions related to the epidemiology of CAM practices, health manpower issues, practice characteristics and the process and content of health care and how discoveries about CAM care may enhance the quality of mainstream health services. A rationale is provided for prioritizing certain conditions and therapies within these efforts.
越来越多的美国家庭为他们的孩子寻求补充和替代医疗护理(CAM);与此同时,医疗保健组织和融资正在经历根本性变革。这些因素的结合为研究CAM疗法的有效性和安全性及其在治疗儿童方面的作用提供了强大动力。本文描述了整体儿科学研究议程的基本原理、范围、优先事项和方法。首要优先事项是开展临床研究项目,以解决用于患有严重疾病的弱势儿童的替代疗法的安全性和有效性问题。此外,主要研究问题包括“替代”“补充”“民间”“综合”和“整体”医学等各种定义对医疗保健观念、专业教育以及产品和服务资金的影响。替代疗法的研究工作需要明确解决专业和非专业服务在实践、信念和提供者之间以及内部存在的巨大异质性。需要进行定性人种学研究,以了解不同的健康和疾病解释模型及意义对医患沟通、遵循专业建议以及护理满意度的影响。卫生服务研究人员需要解决与CAM实践的流行病学、卫生人力问题、实践特征以及医疗保健的过程和内容相关的问题,以及关于CAM护理的发现如何提高主流卫生服务质量的问题。本文为在这些工作中确定某些病症和疗法的优先顺序提供了基本原理。