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预期性悲伤对阿尔茨海默病患者照料者的影响。

The impact of anticipatory grief on caregivers of persons with Alzheimer's disease.

作者信息

Walker R J, Pomeroy E C

出版信息

Home Health Care Serv Q. 1997;16(1-2):55-76. doi: 10.1300/J027v16n01_05.

DOI:10.1300/J027v16n01_05
PMID:10173050
Abstract

Caregivers of persons with Alzheimer's disease (AD) and other dementias are known to experience many physical and emotional problems. However, research has consistently shown that the relationship between the demands of caregiving and the effects on the caregiver is not strong. Despite considerable research, a full understanding of how the demands of caregiving uniquely impact the individual has not been established. The present study examines anticipatory grief, an emotion that has not been studied to date for its possible impact on the current functioning of caregivers. Structured interviews, consisting primarily on standardized measures, were conducted with 100 caregivers. Results of the study show that physical and emotional problems and the expectation to place the patient out of the home were more likely to occur among those caregivers who expressed the most intense grief and those feelings of remorse and anger characteristic of the anger and guilt stages of grief.

摘要

众所周知,阿尔茨海默病(AD)及其他痴呆症患者的照料者会经历许多身体和情感问题。然而,研究一直表明,照料需求与对照料者的影响之间的关系并不紧密。尽管进行了大量研究,但尚未完全明确照料需求如何独特地影响个体。本研究考察了预期性悲伤,这种情绪迄今尚未因其可能对照料者当前功能的影响而得到研究。对100名照料者进行了主要由标准化测量组成的结构化访谈。研究结果表明,身体和情感问题以及将患者安置在家庭之外的期望,更有可能出现在那些表达最强烈悲伤以及具有悲伤愤怒和内疚阶段特征的懊悔和愤怒情绪的照料者中。

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