Ballard E L
Duke Family Support Program, Duke University Medical Center, Durham, North Carolina 27710, USA.
Alzheimer Dis Assoc Disord. 1999 Apr-Jun;13 Suppl 1:S88-92.
More than 4 million persons in the United States are believed to have Alzheimer disease. Seven of 10 are cared for in the community by family members who make numerous decisions ranging from those that have to do with personal care and daily activities to participation in research. Families who do participate in research or who agree for the dementia-impaired individual to participate, do so for a variety or reasons, including the altruistic reason of finding a cure or treatment that may help others. This paper looks at the caregiving experience and those issues that may influence the family to participate in research, what families expect from research, and how they expect researchers to treat the impaired relative.
据信，美国有超过400万人患有阿尔茨海默病。十分之七的患者由家庭成员在社区中照料，这些家庭成员要做出众多决策，从与个人护理和日常活动相关的决策到参与研究的决策。确实参与研究或同意痴呆症患者参与研究的家庭，这样做有各种各样的原因，包括找到可能帮助他人的治愈方法或治疗手段这种利他主义原因。本文探讨了护理经历以及可能影响家庭参与研究的那些问题、家庭对研究的期望，以及他们期望研究人员如何对待受损的亲属。
