Heru Alison M, Ryan Christine E, Iqbal Asma
Butler Hospital, Brown University School of Medicine, Providence, Rhode Island 02906, USA.
Int J Geriatr Psychiatry. 2004 Jun;19(6):533-7. doi: 10.1002/gps.1119.
Caregiver burden has been extensively studied in the dementia population. The marital relationship has been suggested as a mediational model through which variables influence the caregiver and contribute to the experience of burden or reward.
This study examines family functioning, caregiver burden and reward and quality of life in 38 family members caring for a relative with dementia.
Caregivers of out-patients with dementia completed self report questionnaires.
63% of caregivers were female with a mean age of 62 years. Patient mean age was 73 years. The average number of caregiving years was 3.1. Caregivers were more likely to be spouses (61%) than children (29%) or other relatives (11%). Despite the fact that caregivers reported that their relatives were moderately disabled, they perceived more reward than burden. Caregivers who reported poor family functioning had higher ratings of strain and burden. Family functioning in these caregivers was poorest in the dimensions of affective responsiveness, problem solving and communication but it was also impaired in roles and affective involvement.
Assessing a family's functioning may be an important factor in the care of the dementia patient and his/her family.
照顾者负担在痴呆症患者群体中已得到广泛研究。婚姻关系被认为是一种中介模型,通过该模型变量会影响照顾者,并导致负担或回报体验。
本研究调查了38名照顾痴呆症亲属的家庭成员的家庭功能、照顾者负担与回报以及生活质量。
痴呆症门诊患者的照顾者完成了自我报告问卷。
63%的照顾者为女性,平均年龄62岁。患者平均年龄73岁。平均照顾年限为3.1年。照顾者中配偶的比例(61%)高于子女(29%)或其他亲属(11%)。尽管照顾者报告称其亲属有中度残疾,但他们感受到的回报多于负担。报告家庭功能较差的照顾者有更高的压力和负担评分。这些照顾者的家庭功能在情感反应、解决问题和沟通方面最差,但在角色和情感参与方面也受到损害。
评估家庭功能可能是照顾痴呆症患者及其家庭的一个重要因素。