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丹麦国家医院登记册。现代健康科学的宝贵数据来源。

The Danish National Hospital Register. A valuable source of data for modern health sciences.

作者信息

Andersen T F, Madsen M, Jørgensen J, Mellemkjoer L, Olsen J H

机构信息

Institute of Public Health, University of Copenhagen.

出版信息

Dan Med Bull. 1999 Jun;46(3):263-8.

PMID:10421985
Abstract

The Danish National Hospital Register (LPR) has collected nationwide data on all somatic hospital admissions since 1977, and since 1995 data on outpatients and emergency patients have been included as well. Numerous research projects have been undertaken in the national Danish context as well as in collaboration with international teams, and the LPR is truly a valuable source of data for health sciences, especially in epidemiology, health services research and clinical research. Nearly complete registration of somatic hospital events in Denmark is combined with ideal conditions for longterm follow-up due to the existence of a national system of unique person identification in a population of relative demographic stability. Examples of studies are provided for illustration within three main areas: I: Using LPR for surveillance of the occurrence of diseases and of surgical procedures, II: Using the Register as a sampling frame for longitudinal population based and clinical research, and III: Using the Register as a data source for monitoring outcomes. Data available from the Register as well as studies of the validity of the data are mentioned, and it is described how researchers may get access to the Register. The Danish National Hospital Register is well suited to contribute to international comparative studies with relevance for evidence-based medicine.

摘要

丹麦国家医院登记册(LPR)自1977年起收集全国范围内所有躯体疾病住院患者的数据,自1995年起还纳入了门诊患者和急诊患者的数据。丹麦国内以及与国际团队合作开展了众多研究项目,LPR确实是健康科学领域宝贵的数据来源,尤其是在流行病学、卫生服务研究和临床研究方面。丹麦几乎完整地记录了躯体疾病住院事件,并且由于在人口相对稳定的国家存在独特的个人身份识别系统,具备长期随访的理想条件。本文通过三个主要领域的实例进行说明:一、利用LPR监测疾病和外科手术的发生情况;二、将登记册用作基于纵向人群和临床研究的抽样框架;三、将登记册用作监测结果的数据源。文中提及了可从登记册获取的数据以及数据有效性研究,并描述了研究人员如何获取该登记册。丹麦国家医院登记册非常适合为与循证医学相关的国际比较研究做出贡献。

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