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丹麦国家辅助生殖技术登记册:内容和研究潜力。

The Danish National Register of assisted reproductive technology: content and research potentials.

机构信息

Center for Clinical Epidemiology, Odense University Hospital, Kløvervænget 30, Entrance 216, 5000, Odense C, Denmark.

Department of Clinical Research, University of Southern Denmark, Odense, Denmark.

出版信息

Eur J Epidemiol. 2021 Apr;36(4):445-452. doi: 10.1007/s10654-021-00742-8. Epub 2021 Apr 1.

Abstract

The Danish National Register of assisted reproductive technology (ART) was initially established in 1994. The register comprises complete information on all ART procedures in public and private clinics in Denmark from 2013 and onwards, including baseline information on the cause of infertility and a number of health-related patient characteristics. The register enables monitoring and research on infertility treatment and reproductive topics in single women or couples seeking assisted reproduction, and the register is thus a key component of the Danish health information system within human reproduction. We aimed to provide an updated description of the register including advantages and pitfalls when using the register for reproductive epidemiological research, and a description of the accessibility for researchers. The Danish ART register is a valuable tool for epidemiological research. However, the inherent strengths and limitations ought to be in perspective when designing studies and interpreting the study results. Reports with annually aggregated data on ART treatments, can be accessed on the Danish Health Data Authority web page and researchers may obtain access to individual pseudonomized data via secure servers at the Danish Health Data Authority and Statistics Denmark.

摘要

丹麦国家辅助生殖技术(ART)登记处最初成立于 1994 年。该登记处包含了丹麦公立和私立诊所自 2013 年以来所有 ART 程序的完整信息,包括不孕原因和一些与健康相关的患者特征的基线信息。该登记处能够对单身女性或寻求辅助生殖的夫妇的不孕治疗和生殖主题进行监测和研究,因此是丹麦生殖健康信息系统的一个关键组成部分。我们旨在提供对该登记处的更新描述,包括在生殖流行病学研究中使用该登记处的优势和缺陷,并描述研究人员对其的可及性。丹麦 ART 登记处是进行流行病学研究的有价值工具。然而,在设计研究和解释研究结果时,应该正确看待其固有的优势和局限性。关于 ART 治疗的年度汇总数据报告可在丹麦卫生数据管理局的网页上获取,研究人员可以通过丹麦卫生数据管理局和丹麦统计局的安全服务器获得个人化名数据。

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