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父母探视、沟通及参与伦理决策:欧洲新生儿病房政策比较

Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe.

作者信息

Cuttini M, Rebagliato M, Bortoli P, Hansen G, de Leeuw R, Lenoir S, Persson J, Reid M, Schroell M, de Vonderweid U, Kaminski M, Lenard H, Orzalesi M, Saracci R

机构信息

Unit of Epidemiology and Unit of Neonatal Intensive Care, Burlo Garofolo Children's Hospital, Trieste, Italy.

出版信息

Arch Dis Child Fetal Neonatal Ed. 1999 Sep;81(2):F84-91. doi: 10.1136/fn.81.2.f84.

Abstract

AIM

To compare neonatal intensive care unit policies towards parents' visiting, information, and participation in ethical decisions across eight European countries.

METHODS

One hundred and twenty three units, selected by random or exhaustive sampling, were recruited, with an overall response rate of 87%.

RESULTS

Proportions of units allowing unrestricted parental visiting ranged from 11% in Spain to 100% in Great Britain, Luxembourg and Sweden, and those explicitly involving parents in decisions from 19% in Italy to 89% in Great Britain. Policies concerning information also varied.

CONCLUSIONS

These variations cannot be explained by differences in unit characteristics, such as level, size, and availability of resources. As the importance of parental participation in the care of their babies is increasingly being recognised, these findings have implications for neonatal intensive care organisation and policy.

摘要

目的

比较八个欧洲国家新生儿重症监护病房在父母探视、信息提供以及参与伦理决策方面的政策。

方法

通过随机抽样或全面抽样选取了123个病房,总体回复率为87%。

结果

允许父母无限制探视的病房比例从西班牙的11%到英国、卢森堡和瑞典的100%不等,明确让父母参与决策的比例从意大利的19%到英国的89%不等。关于信息提供的政策也各不相同。

结论

这些差异无法用病房特征的不同来解释,如级别、规模和资源可用性。随着父母参与照顾其婴儿的重要性日益得到认可,这些发现对新生儿重症监护的组织和政策具有启示意义。

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Arch Pediatr. 1997 Jul;4(7):662-70. doi: 10.1016/s0929-693x(97)83370-2.
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Arch Pediatr. 1996 Dec;3(12):1262-9. doi: 10.1016/s0929-693x(97)85939-8.
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End-of-life decisions in Dutch neonatal intensive care units.
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