Kylmä J, Vehviläinen-Julkunen K, Lähdevirta J
Department of Nursing Science, University of Kuopio, Finland.
Nurs Ethics. 1999 May;6(3):224-39. doi: 10.1177/096973309900600305.
The purpose of this article is to describe and reflect ethical challenges in a grounded theory study on the dynamics of hope in HIV-positive adults and their significant others. It concentrates on the justification of a research problem, sensitive research and the relationship between the researcher and the participants in data collection. The basis of ethically sound nursing research on the dynamics of hope in these two vulnerable groups lies in the relationship between the researchers and the participant. However, it is also obvious that the content, the process, the methods used and the ethics of the study cannot be divorced from this relationship. In conducting grounded theory research on the dynamics of hope in this research population, the researcher has to consider the surrounding world, that is, the reality in which these people live in hope or despair.
本文旨在描述和反思一项关于HIV阳性成年人及其重要他人的希望动态的扎根理论研究中的伦理挑战。它着重于研究问题的合理性、敏感性研究以及数据收集过程中研究者与参与者之间的关系。对这两个弱势群体的希望动态进行符合伦理的护理研究,其基础在于研究者与参与者之间的关系。然而,同样明显的是,研究的内容、过程、所采用的方法以及伦理都无法脱离这种关系。在对这一研究群体的希望动态进行扎根理论研究时,研究者必须考虑周围的世界,即这些人生活在希望或绝望中的现实。