Bradley C, Todd C, Gorton T, Symonds E, Martin A, Plowright R
Department of Psychology, Royal Holloway, University of London, Egham, Surrey, UK.
Qual Life Res. 1999;8(1-2):79-91. doi: 10.1023/a:1026485130100.
The objectives of the study were to design and develop a questionnaire to measure individuals' perceptions of the impact of diabetes on their quality of life (QoL). The design of the ADDQoL (Audit of Diabetes Dependent QoL) was influenced by patient-centred principles underlying the SEIQoL interview method. Respondents rate only personally-applicable life domains, indicating importance and impact of diabetes. Fifty-two out-patients with diabetes and 102 attending diabetes education open days provided data for psychometric analyses. Each of the 13 domain-specific ADDQoL items was relevant and important for substantial numbers of respondents. Factor analysis and Cronbach's alpha coefficient of internal consistency (0.85) supported combination of items into a scale. Insulin-treated patients reported greater impact of diabetes on QoL than table/diet-treated patients. People with microvascular complications showed, as expected, greater diabetes-related impairment of QoL than people without complications. Unlike other QoL measures, the ADDQoL is an individualized questionnaire measure of the impact of diabetes and its treatment on QoL. Preliminary evidence of reliability and validity is established for adults with diabetes. Findings suggest that the ADDQoL will be more sensitive to change and responsive to differences than generic QoL measures.
该研究的目的是设计并开发一份问卷，以衡量个体对糖尿病对其生活质量（QoL）影响的认知。糖尿病相关生活质量调查问卷（ADDQoL）的设计受到了SEIQoL访谈方法所依据的以患者为中心原则的影响。受访者仅对个人适用的生活领域进行评分，表明糖尿病的重要性和影响。52名糖尿病门诊患者和102名参加糖尿病教育开放日的人员为心理测量分析提供了数据。ADDQoL的13个特定领域项目中的每一个对大量受访者来说都是相关且重要的。因子分析和克朗巴赫内部一致性α系数（0.85）支持将这些项目组合成一个量表。接受胰岛素治疗的患者报告称，糖尿病对生活质量的影响比接受片剂/饮食治疗的患者更大。正如预期的那样，有微血管并发症的人比没有并发症的人在与糖尿病相关的生活质量受损方面表现得更严重。与其他生活质量测量方法不同，ADDQoL是一种针对糖尿病及其治疗对生活质量影响的个体化问卷调查方法。已为成年糖尿病患者建立了可靠性和有效性的初步证据。研究结果表明，ADDQoL比通用的生活质量测量方法对变化更敏感，对差异更有反应。
