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衡量多发性硬化症中的残疾情况。

Measuring handicap in multiple sclerosis.

作者信息

Thompson A J

机构信息

Department of Clinical Neurology, Institute of Neurology, Queen Square, London WC1N 3BG, UK.

出版信息

Mult Scler. 1999 Aug;5(4):260-2. doi: 10.1177/135245859900500411.

DOI:10.1177/135245859900500411
PMID:10467385
Abstract

Handicap, shortly to be renamed participation, is a well defined though somewhat neglected entity which addresses an important aspect of the impact disease has on the individual. It is particularly relevant in Multiple Sclerosis (MS) which has such a major impact on issues such as employment, relationships, transport and social integration. Few validated measuring tools exist, and the generic London Handicap Scale is probably the best currently available but is only appropriate for group comparison. Handicap should be monitored in MS and is particularly appropriate in the evaluation of rehabilitation strategies.

摘要

残障(不久后将更名为参与度)是一个定义明确但在一定程度上被忽视的概念,它涉及疾病对个体影响的一个重要方面。这在多发性硬化症(MS)中尤为相关,因为它对就业、人际关系、交通和社会融合等问题有着重大影响。现有的经过验证的测量工具很少,通用的伦敦残障量表可能是目前最好用的,但仅适用于组间比较。在MS中应监测残障情况,这在评估康复策略时尤为适用。

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引用本文的文献

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J Neurol. 2012 Aug;259(8):1713-26. doi: 10.1007/s00415-011-6399-9. Epub 2012 Jan 24.
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Longitudinal changes in social functioning in mildly disabled patients with relapsing-remitting multiple sclerosis receiving subcutaneous interferon β-1a: results from the COGIMUS (COGnitive Impairment in MUltiple Sclerosis) study (II).复发缓解型多发性硬化症轻度残疾患者皮下注射干扰素β-1a 后社会功能的纵向变化:COGIMUS(多发性硬化症认知障碍)研究(II)的结果。
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The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference.《国际共识会议:多发性硬化症的 ICF 核心集制定》研究结果。
J Neurol. 2011 Aug;258(8):1477-88. doi: 10.1007/s00415-011-5963-7. Epub 2011 Mar 4.