Research Unit for Biopsychosocial Health, Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität (LMU), Marchioninistraße 17, 81377 Munich, Germany.
J Neurol. 2011 Aug;258(8):1477-88. doi: 10.1007/s00415-011-5963-7. Epub 2011 Mar 4.
To systematically and comprehensively describe functioning and disability in Multiple sclerosis (MS), practical tools based on the International Classification of Functioning, Disability and Health (ICF), such as ICF Core Sets, are needed.
To report on the results of an evidence-based International Consensus Conference to develop the Comprehensive and Brief ICF Core Set for MS. A formal and iterative decision-making and consensus process was undertaken, involving the integration of evidence from preparatory studies (expert survey, systematic literature review, qualitative study, empirical cross-sectional study) and expert opinion. The decision-making and consensus process included discussions and voting in working groups and plenary sessions involving selected international experts from different health professions. Twenty-one experts from 16 countries selected 138 ICF categories for the Comprehensive ICF Core for MS (40 Body functions, 7 Body structures, 53 Activities and Participation categories and 38 Environmental factors) and 19 categories for the Brief ICF Core Set for MS (8 Body functions, 2 Body structures, 5 Activities and Participation categories, 4 Environmental factors). An evidence-based and formal decision-making consensus process led to the approval of ICF Core Sets for MS which should be further validated.
报告基于循证的国际共识会议的结果，该会议旨在制定用于多发性硬化症的全面和简要国际功能、残疾和健康分类（ICF）核心集。采用正式和迭代的决策与共识过程，整合了预备研究（专家调查、系统文献回顾、定性研究、经验性横断面研究）和专家意见中的证据。决策和共识过程包括工作组和全体会议中的讨论和投票，涉及来自不同健康专业的选定国际专家。21 名来自 16 个国家的专家为多发性硬化症全面 ICF 核心集选择了 138 个 ICF 类别（40 个身体功能、7 个身体结构、53 个活动和参与类别和 38 个环境因素），为多发性硬化症简要 ICF 核心集选择了 19 个类别（8 个身体功能、2 个身体结构、5 个活动和参与类别、4 个环境因素）。循证和正式的决策共识过程导致批准了多发性硬化症的 ICF 核心集，这些核心集应进一步验证。
