Widar M, Ahlström G
Department of Caring Sciences, University of Orebro, Sweden.
Scand J Caring Sci. 1999;13(1):33-40.
Increasing muscular atrophy and joint instability in the post-polio syndrome (PPS) leads to muscle and joint pain. The aim of this study was to describe how persons with post-polio syndrome (PPS) perceive their pain and how the pain affects their everyday lives. The Multidimensional Pain Inventory (MPI-S) was used together with supplementary questions concerning location and verbal description of the pain. The study group comprised 37 persons with PPS who had had pain for an average of 19 years. Most commonly reported was pain from the joints of the extremities, followed by pain from the lower back. The verbal description suggests that pain is a palpable health problem for this study group. The results of the MPI-S show that women had the most pain and that the younger the persons are, the more the pain involves negative stress experiences. Activities such as outdoor work, social and other activities away from home involve difficulties, according to the results. The study group could manage their pain, experienced social support, and especially women managed to carry out household chores despite their pain. The MPI-S demonstrates acceptable reliability for this study group.
小儿麻痹后遗症（PPS）中日益增加的肌肉萎缩和关节不稳定会导致肌肉和关节疼痛。本研究的目的是描述小儿麻痹后遗症（PPS）患者如何感知他们的疼痛以及疼痛如何影响他们的日常生活。多维疼痛问卷（MPI-S）与有关疼痛部位和文字描述的补充问题一起使用。研究组由37名患有小儿麻痹后遗症（PPS）的患者组成，他们平均疼痛了19年。最常报告的是四肢关节疼痛，其次是下背部疼痛。文字描述表明，疼痛对该研究组来说是一个明显的健康问题。MPI-S的结果表明，女性疼痛最为严重，而且年龄越小，疼痛涉及的负面压力体验就越多。根据结果，诸如户外工作、社交和其他离家活动等都存在困难。研究组能够应对他们的疼痛，感受到社会支持，尤其是女性尽管疼痛仍设法完成家务。MPI-S对该研究组显示出可接受的可靠性。
