Habermann B
University of Washington, Department of Family and Child Nursing, Seattle 98195-7262, USA.
J Neurosci Nurs. 1999 Aug;31(4):200-7. doi: 10.1097/01376517-199908000-00001.
This interpretive study explored the experience of having Parkinson's disease (PD) in middle life. The researcher examined how persons with PD (N = 16) coped with challenges to their sense of self and a future of limited horizons. Participants were ages 42-59 years (mean age = 48 years) and had been diagnosed for a range of 1-16 years. In-depth interviews, focusing on day to day experiences, coping episodes and future hopes and concerns, were conducted on 3 occasions. Findings indicated that participants maintained an intact identity by sustaining a sense of continuity with their pre-Parkinson's self. They dealt with the progressive nature of their illness of by keeping open a range of possibilities for the future. This study advances understanding of the challenges experienced by those with PD and suggests ways in which nurses may be able to be more effective in supporting individuals who are living with this disease.
这项诠释性研究探讨了中年帕金森病（PD）患者的经历。研究者考察了帕金森病患者（N = 16）如何应对自我认知挑战以及前景有限的未来。参与者年龄在42至59岁之间（平均年龄 = 48岁），已确诊1至16年。研究进行了3次深度访谈，聚焦日常经历、应对事件以及未来的希望与担忧。研究结果表明，参与者通过保持与帕金森病发病前自我的连续性来维持完整的身份认同。他们通过为未来保留一系列可能性来应对病情的渐进性。本研究增进了对帕金森病患者所经历挑战的理解，并提出了护士在支持帕金森病患者方面可能更有效的方法。
