Habermann B
School of Nursing, University of San Francisco, USA.
West J Nurs Res. 1996 Aug;18(4):397-413. doi: 10.1177/019394599601800403.
This interpretive study explored the experience of having Parkinson's disease in middle life. The researcher examined the day-to-day demands experienced by 16 people (9 men and 7 women), ages 42-59 years, who had been diagnosed with Parkinson's disease for a range of 1-16 years. Demands directly attributable to the illness included acknowledging symptoms and seeking help, balancing emotional responses, dealing with a changing body, gaining formal and practical knowledge, and dealing with unpredictability. The illness also created demands related to changing roles, sense of identity, and relationships. This study advances understanding of the difficulties and challenges experienced by those who live with Parkinson's disease and has implications for nursing practice with this population.
这项诠释性研究探讨了中年帕金森病患者的经历。研究人员调查了16名年龄在42至59岁之间、已被诊断患有帕金森病1至16年的患者（9名男性和7名女性）的日常需求。直接归因于该疾病的需求包括承认症状并寻求帮助、平衡情绪反应、应对身体变化、获取正式和实用知识以及应对不可预测性。该疾病还带来了与角色转变、身份认同和人际关系相关的需求。这项研究增进了对帕金森病患者所经历的困难和挑战的理解，并对针对这一人群的护理实践具有启示意义。
