Mystakidou K, Tsilika E, Befon S, Kululias V, Vlahos L
Palliative Research Unit, Linköping University, Vrinnevi Hospital, Norrköping, Sweden.
Palliat Med. 1999 Sep;13(5):385-92. doi: 10.1191/026921699669663451.
Health-related quality of life (HRQL) is difficult to define and measure. It is a generic term that includes concepts such as physical health, life satisfaction, psychological well-being and self-integrity. Realizing and appreciating the importance of HRQL is crucial for physicians if they are to be in a position to offer appropriate suggestions in assisting patients and their families in the decision-making process regarding cancer treatment and terminal care. In order to determine whether Greek physicians take into consideration HRQL when assessing different therapeutic options, we conducted a postal survey. A total of 1500 Greek physicians (internists, oncologists and anaesthesiologists) were asked to complete a questionnaire. We received replies from 1280 (85%). In summary, we found that Greek physicians: (1) have already started taking HRQL into consideration when reviewing their therapeutic options; (2) increasingly include HRQL in research studies as an outcome measure; (3) do not yet have thoroughly sufficient training in the holistic care of cancer patients and their families; (4) mostly do not have the opportunity to work in interdisciplinary therapeutic teams where they can exchange ideas and consider different aspects of alternative therapeutic methods. It is concluded that HRQL has already been introduced as an important determinant of therapeutic choices in cancer care in Greece. However, efforts need to be made to allow HRQL to enjoy its appropriate place in cancer care.
健康相关生活质量（HRQL）难以定义和衡量。它是一个通用术语，涵盖身体健康、生活满意度、心理健康和自我完整性等概念。如果医生要能够在协助患者及其家属进行癌症治疗和临终关怀的决策过程中提供适当建议，认识并重视HRQL的重要性至关重要。为了确定希腊医生在评估不同治疗方案时是否考虑到HRQL，我们进行了一项邮寄调查。总共1500名希腊医生（内科医生、肿瘤学家和麻醉师）被要求填写一份问卷。我们收到了1280份回复（85%）。总之，我们发现希腊医生：（1）在审查治疗方案时已经开始考虑HRQL；（2）越来越多地将HRQL纳入研究作为一项结果指标；（3）在癌症患者及其家属的整体护理方面尚未接受足够充分的培训；（4）大多数人没有机会在跨学科治疗团队中工作，在那里他们可以交流想法并考虑替代治疗方法的不同方面。结论是，在希腊，HRQL已被作为癌症护理中治疗选择的一个重要决定因素引入。然而，需要做出努力，使HRQL在癌症护理中占据适当的位置。
