Baylé F J, Chauchot F, Maurel M, Ledoriol A L, Gérard A, Pascal J C, Azorin J M, Olie J P, Lôo H
Université Paris V, Centre Hospitalier Sainte-Anne.
Encephale. 1999 Nov-Dec;25(6):603-11.
Medical information for the general public, patients and their families is a current Public Health priority. What information can be given to a patient suffering from schizophrenia, whose understanding and judgement capacities are supposedly affected by this mental disease? In the United States, 70% of psychiatrists inform patients of schizophrenia and diagnosis of schizophreniform disorder, while in Japan less than 30% do this. The lack of information given to the general public on the disease may contribute to reinforcing the difficulty in announcing the diagnosis. Indeed, the beliefs and attitudes of the patient, his/her family, the general population and health carers concerning the disease do not match up. However, the first two years seem to be a main issue for the subsequent evolution of the disease. No specific data on the attitude of French clinicians with respect to the announcement of the diagnosis is available. In the current legal context and in view of the advances in treatment, we have carried out a survey among French psychiatrists. It is an auto-questionnaire, transversal epidemiological, descriptive and analytical. The questionnaire was sent to a population of 12,958 psychiatrists. It comprised 48 questions: 7 referred to the socio-demographic and professional characteristics of the subjects, 22 to the attitude with respect to the announcement of the diagnosis to the patients, and the last 18 concerned the attitude with respect to the announcement of the diagnosis to the families. 1,691 questionnaires were returned by free post and analysed. The socio-demographic characteristics of the sample are close to those of French psychiatrists as a whole. The number of patients suffering from schizophrenia in the active files of the psychiatrists is 24% (+/- 21.4) on the entire sample. Approximately a third (37.8%) of psychiatrists deem it necessary to announce the schizophrenia diagnosis and approximately two thirds (69.5%) declare that they sometimes announce it. Among the patients suffering from schizophrenia in the active files of the psychiatrists who responded, approximately a third (34%) were informed of their diagnosis. The main reasons for not announcing the diagnosis are firstly the "reticence to give a diagnosis label" and secondly "the functional incapacity of the patient to understand the concept". The alternative diagnosis term most commonly used is "psychosis" (46.5%). However, 48.1% of practitioners state that the announcement of a specific diagnosis allows a better therapeutic combination. Depending on the proportion of patients suffering from schizophrenia in their active file presented in two categories (< 10% and > 10%), psychiatrists significantly most frequently announce the specific diagnosis (17.3% vs 25.3%, p < 10(-3). A statistically significant proportion of younger psychiatrists (44.4 vs 46.3, p < 10(-3) with fewer years of practice (14.1 vs 15.8), more often believe that it is necessary to announce the diagnosis. The rate of response (13.5%) for this type of survey seems high, which could indicate a high interest among psychiatrists with respect to this question. Our data showed the existence of a correlation between age, number of years in practice, type of practice and the proportion of patients suffering from schizophrenia in the active file on the one hand and the attitude of the psychiatrists with respect to the announcement of the diagnosis on the other hand. It is possible that the multi-disciplinary team work of public practice psychiatrists and the fact that they are more often confronted with schizophrenic disease facilitate the announcement of this diagnosis. In the survey population, the inability to give a diagnosis may be related to the questions of the practitioners about the capacity of the subjects to understand, the lack of precision of this diagnosis, the fear of disheartening the patients and the absence of curative treatment. The risk of suicide does not seem to be one
面向普通大众、患者及其家属的医学信息是当前公共卫生的重点。对于患有精神分裂症的患者,鉴于其理解和判断能力可能受到这种精神疾病的影响,能向他们提供哪些信息呢?在美国,70%的精神科医生会告知精神分裂症患者及精神分裂症样障碍的诊断结果,而在日本,这样做的医生不到30%。向普通大众提供的关于该疾病的信息不足,可能会加剧公布诊断结果的难度。事实上,患者、其家属、普通大众以及医护人员对该疾病的看法和态度并不一致。然而,疾病的头两年似乎是其后续发展的关键时期。目前尚无关于法国临床医生对公布诊断结果的态度的具体数据。在当前的法律背景下,鉴于治疗方面的进展,我们对法国精神科医生进行了一项调查。这是一份自填式问卷,具有横断面流行病学、描述性和分析性的特点。问卷被发送给了12958名精神科医生。问卷包含48个问题:7个涉及受试者的社会人口统计学和专业特征,22个关于向患者公布诊断结果的态度,最后18个关乎向家属公布诊断结果的态度。1691份问卷通过邮寄方式回收并进行了分析。样本的社会人口统计学特征与法国全体精神科医生的特征相近。在整个样本中,精神科医生活跃档案中的精神分裂症患者数量为24%(±21.4)。大约三分之一(37.8%)的精神科医生认为有必要公布精神分裂症的诊断结果,约三分之二(69.5%)宣称他们有时会公布。在回复问卷的精神科医生活跃档案中的精神分裂症患者中,约三分之一(34%)被告知其诊断结果。不公布诊断结果的主要原因首先是“不愿给出诊断标签”,其次是“患者在功能上无能力理解该概念”。最常用的替代诊断术语是 “精神病”(46.5%)。然而,48.1%的从业者表示公布具体诊断有助于更好地进行治疗组合。根据精神科医生活跃档案中精神分裂症患者所占比例分为两类(<10%和>10%),精神科医生公布具体诊断的频率显著更高(17.3%对25.3%,p<10⁻³)。在统计学上,显著比例的年轻精神科医生(44.4对46.3,p<10⁻³),从业年限较少(14.1对15.8),更常认为有必要公布诊断结果。这类调查的回复率(13.5%)似乎较高,这可能表明精神科医生对这个问题兴趣浓厚。我们的数据显示,一方面年龄、从业年限、执业类型以及精神科医生活跃档案中精神分裂症患者的比例,与另一方面精神科医生对公布诊断结果的态度之间存在相关性。公共执业精神科医生的多学科团队工作以及他们更常接触精神分裂症疾病这一事实,可能有助于公布这一诊断结果。在调查人群中,无法给出诊断可能与从业者对受试者理解能力的疑问、该诊断缺乏精确性、担心使患者沮丧以及缺乏治愈性治疗有关。自杀风险似乎并非其中一个……(原文此处不完整)