Watson M, Edwards L, Von Essen L, Davidson J, Day R, Pinkerton R
The Royal Marsden Hospital, Sutton, UK.
Int J Cancer Suppl. 1999;12:65-70.
Our objective was to develop a health-related quality of life measure for use in pediatric oncology. The development process followed the EORTC Quality of Life Study Group (QLSG) guidelines but utilized a parental proxy rating methodology developed within the framework of the EORTC QLSG. Data are reported on the preliminary stages of development, which include interviews in the target population, specialist review of questionnaire content and initial results on the psychometric structure of the measure. The questionnaire has been translated from English to Swedish and Dutch and is available for international field testing. Suggestions for further development of the new measure are described, including the need for parallel forms for use with children and adolescents as well as the parental proxy rating form described here.
我们的目标是开发一种用于儿科肿瘤学的健康相关生活质量测量方法。开发过程遵循欧洲癌症研究与治疗组织生活质量研究组（QLSG）的指南，但采用了在QLSG框架内开发的家长代理评级方法。报告了该测量方法开发的初步阶段的数据，包括对目标人群的访谈、问卷内容的专家评审以及该测量方法心理测量结构的初步结果。该问卷已从英文翻译成瑞典语和荷兰语，可供进行国际现场测试。描述了对新测量方法进一步开发的建议，包括需要与儿童和青少年一起使用的平行版本以及此处所述的家长代理评级版本。
