Köhlen C, Beier J, Danzer G
Institut für Medizin-/Pflegepädagogik und Pflegewissenschaft, Charité-Universitätsklinikum, Medizinische Fakultät, Humboldt-Universität zu Berlin.
Pflege. 1999 Oct;12(5):309-14. doi: 10.1024/1012-5302.12.5.309.
This qualitative study deals with the subjective experiences of families with chronically-ill children and with experiences of the External Care Services (EPD) in Berlin, who exclusively conduct home-care for children. Learning to cope with chronic illness is a process that often demands professional help that extends beyond the time spent in hospital. Essential for the analysis performed here are the systemic positions put forward by v. Uexküll, Wesiack (psychosomatic medicine) and Friedemann (nursing science) who stress the connection between health and relationship. The parents' positive experiences reflect the patient-oriented understanding of health-care developed by the takes in the families in many respects. Without the care offered by the EPD some children would have been torn out of their family environment due to hospitalizations. This would have resulted in the damaging of the family health.
这项定性研究涉及患有慢性病儿童的家庭的主观经历，以及柏林专门为儿童提供家庭护理的外部护理服务（EPD）的经历。学会应对慢性病是一个通常需要超出住院时间的专业帮助的过程。此处分析的关键是由冯·于克斯屈尔、韦西亚克（身心医学）和弗里德曼（护理科学）提出的系统观点，他们强调健康与关系之间的联系。父母的积极经历在许多方面反映了家庭中形成的以患者为导向的医疗保健理解。如果没有EPD提供的护理，一些儿童可能会因住院而被迫离开家庭环境。这将导致家庭健康受损。
