Newton Kimberly, Lamarche Kimberley
Primary Health Care Clinic, Tatamagouche, Canada.
Home Healthc Nurse. 2012 May;30(5):E1-8. doi: 10.1097/NHH.0b013e318252c3d5.
Parents of children with chronic illnesses experience tremendous burden when caring for their children at home. There are many challenges that are present throughout the course of chronic illnesses. To provide better care to the family caring for an ill child at home, clinicians must understand the experiences family members go through on a daily basis. The purpose of this article is to help clinicians better understand these parental experiences; by increasing clinicians' awareness, strategies can then be used, which will improve the outcome for the child, parents, and siblings.
患有慢性病的儿童的父母在家照顾孩子时承受着巨大的负担。在慢性病的整个病程中存在许多挑战。为了更好地照顾在家照顾患病儿童的家庭,临床医生必须了解家庭成员日常所经历的事情。本文的目的是帮助临床医生更好地理解这些父母的经历;通过提高临床医生的认识,进而可以采用一些策略,这将改善孩子、父母和兄弟姐妹的状况。