Molassiotis A, Chan C W, Yam B M, Chan S J
Department of Nursing, Chinese University of Hong Kong, Shatin, NT.
Support Care Cancer. 2000 Sep;8(5):414-22. doi: 10.1007/s005200050011.
Sixty-two Hong Kong Chinese women with gynaecological cancers participated in this cross-sectional study to assess their quality of life (QOL). Chinese versions of the World Health Organisation Quality of Life Measure--abbreviated version, the Profile of Mood States, and the Sexual Relationships subscale of the Psychosocial Adjustment to Illness Scale were used. Qualitative data were collected about the meaning of QOL and the areas of life most affected by the cancer and its treatments. The overall QOL was found to be moderate (mean 92.4, SD 16.34), with the domains of psychological health and social relationships most affected. The distressed facets of life were related to pain, dependency, finances, sexuality, psychological health and spirituality. Mobility, accepting one's outlook, social support and "eating" were areas considered by these women to contribute to a better QOL. The meaning of QOL was described in terms of happiness and material resources. The overall mood score was found to be impaired (mean 43.84, SD 32.31), with relatively high scores for depression, anger and tension. Depression could explain 45% of the variance in the QOL. Despite some missing data, sexual relationships among the respondents were moderately affected, with reduced sexual desire and activity. However, the patients' relationships with their husbands were minimally affected, suggesting the men's understanding and support in the cancer trajectory of their wives. Areas of life that may need further support, such as sexual functioning and psychosocial adjustment, could be improved by the use of sex therapy or group support interventions. Limitations of the present study and suggestions for future research are discussed.
62名患有妇科癌症的中国香港女性参与了这项横断面研究，以评估她们的生活质量（QOL）。使用了世界卫生组织生活质量量表简版、情绪状态剖面图以及疾病心理社会适应量表的性关系子量表的中文版。收集了关于生活质量的意义以及癌症及其治疗对生活影响最大的领域的定性数据。发现总体生活质量为中等水平（均值92.4，标准差16.34），其中心理健康和社会关系领域受影响最大。生活中令人苦恼的方面与疼痛、依赖、经济状况、性、心理健康和精神性有关。这些女性认为活动能力、接受自身状况、社会支持和“饮食”有助于提高生活质量。生活质量的意义用幸福和物质资源来描述。发现总体情绪得分受损（均值43.84，标准差32.31），抑郁、愤怒和紧张得分相对较高。抑郁可解释生活质量差异的45%。尽管存在一些缺失数据，但受访者之间的性关系受到中度影响，性欲和性活动减少。然而，患者与其丈夫的关系受到的影响最小，这表明男性对妻子癌症病程的理解和支持。生活中可能需要进一步支持的领域，如性功能和心理社会适应，可通过性治疗或团体支持干预来改善。讨论了本研究的局限性以及对未来研究的建议。
