Rätsepp M, Oun A, Haldre S, Kaasik A E
Department of Neurology and Neurosurgery, Faculty of Medicine, University of Tartu, Estonia.
Seizure. 2000 Sep;9(6):394-401. doi: 10.1053/seiz.2000.0439.
This article examines the impact of epilepsy and its treatment on employment status and the extent of stigma among patients with epilepsy. Clinical and demographic data concerning patients examined during a recent epidemiological survey were obtained from medical notes and postal self-completed questionnaires. Information was collected from 90 patients aged 16-70 years. A third of the respondents had been seizure-free during the last year. Thirty-nine percent were working full-time, 24% were working part-time and 11% were unemployed. Sixty-three percent from those working part-time or unemployed considered their epilepsy to be a significant reason for this. Overall, 55.4% believed they had been treated unfairly at work or when trying to get a job. Fifty-one percent of respondents felt stigmatized by epilepsy, 14% of them highly so. The level of employment among epileptic people was not lower than in the general population. The percentage of stigmatization in general and the percentage of the severely stigmatized was as high or even higher than in other studies. Occurrence of stigma and its severity depended first and foremost on the type of seizures. The frequency of seizures was not clearly related to this.
本文探讨癫痫及其治疗对就业状况的影响以及癫痫患者的耻辱感程度。通过病历和邮寄的自填问卷，获取了近期一项流行病学调查中所检查患者的临床和人口统计学数据。收集了90名年龄在16至70岁之间患者的信息。三分之一的受访者在过去一年中无癫痫发作。39%的人全职工作，24%的人兼职工作，11%的人失业。在兼职工作或失业的人中，63%认为他们的癫痫是造成这种情况的重要原因。总体而言，55.4%的人认为他们在工作或求职时受到了不公平对待。51%的受访者感到因癫痫而受到耻辱，其中14%的人感受强烈。癫痫患者的就业水平并不低于普通人群。总体耻辱感的比例以及严重耻辱感的比例与其他研究相比一样高甚至更高。耻辱感的发生及其严重程度首先取决于癫痫发作的类型。癫痫发作的频率与此并无明显关联。
