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希腊公众对癫痫的认知、理解及态度调查。

A survey of public awareness, understanding, and attitudes toward epilepsy in Greece.

作者信息

Diamantopoulos Nicholaos, Kaleyias Joseph, Tzoufi Meropi, Kotsalis Charilaos

机构信息

Department of Pediatric Neurology, Karamandanion Children's Hospital, Patra, and Department of Pediatrics, University of Ioannina Hospital, Greece.

出版信息

Epilepsia. 2006 Dec;47(12):2154-64. doi: 10.1111/j.1528-1167.2006.00891.x.

DOI:10.1111/j.1528-1167.2006.00891.x
PMID:17201717
Abstract

PURPOSE

To assess familiarity, understanding, and attitude toward epilepsy in Greece and identification of negative predictive factors.

METHODS

A 19-item questionnaire was administered to 750 adults. The magnitude of social stigma toward epileptic people with epilepsy was measured with a quantitative scale of social rejection. Statistical analysis with chi-square and multiple regression analysis were used to identify factors associated with negative attitudes.

RESULTS

Of our respondents 38.8% knew someone with epilepsy and 50.8% had witnessed a seizure. Nineteen percent believed that epilepsy is a type of mental retardation, 15% believed it is a type of insanity, 91.8% considered epilepsy as a brain disorder while 5.2% considered it as a supernatural phenomenon. Seventy-seven percent considered epilepsy as a curable disease while 57.5% believed that the risk of inheriting it is very high. Regarding marriage to a patient with epilepsy 45.4% rejected it while regarding his employment 37.7% were positive, 47.8% were skeptical while 12.8% were against it. The Greek public's rejection tendency toward epileptic people was generally low. Negative predictive factors were older age, low educational level, unfamiliarity with epilepsy, and erroneous beliefs about epilepsy.

CONCLUSIONS

The Greek public is familiar with epilepsy but has a suboptimal level of appropriate understanding of essential aspects of the disease. The overall public's level of rejection toward people with epilepsy is low but certain groups of people are highly rejective. Information campaigns targeting specific population subgroups are necessary in Greece in order to improve the public's understanding of epilepsy and tolerance toward people with epilepsy.

摘要

目的

评估希腊民众对癫痫的熟悉程度、理解情况及态度,并确定负面预测因素。

方法

对750名成年人进行了一项包含19个条目的问卷调查。采用社会排斥定量量表来衡量对癫痫患者的社会污名程度。运用卡方检验和多元回归分析进行统计分析,以确定与负面态度相关的因素。

结果

在我们的受访者中,38.8%认识癫痫患者,50.8%目睹过癫痫发作。19%的人认为癫痫是一种智力缺陷,15%的人认为是一种精神错乱,91.8%的人认为癫痫是一种脑部疾病,而5.2%的人认为是一种超自然现象。77%的人认为癫痫是一种可治愈的疾病,而57.5%的人认为遗传风险非常高。关于与癫痫患者结婚,45.4%的人拒绝,而对于其就业,37.7%的人持肯定态度,47.8%的人持怀疑态度,12.8%的人反对。希腊公众对癫痫患者的排斥倾向总体较低。负面预测因素包括年龄较大、教育水平低、对癫痫不熟悉以及对癫痫的错误认知。

结论

希腊公众对癫痫有所了解,但对该疾病基本方面的适当理解水平欠佳。公众对癫痫患者的总体排斥程度较低,但某些人群的排斥性较高。在希腊,针对特定人群亚组开展宣传活动对于提高公众对癫痫的理解以及对癫痫患者的容忍度是必要的。

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